Category: The Samantha Years
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Gloves
I have taken the boxing gloves off tonight…. Because they are heavy, cumbersome, I think they might cause carpal tunnel and I no longer feel the need to fight. It has been a day. Samantha is on her third I.V. today. Her arms are swollen and puffy from failed lines leaking into her system. She…
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Every Party Needs a Pooper
Discharge day from the hospital is a party…. Whooo Hooo!!! We are outta here!!! Emails are sent, family is called and bags are packed. Everything is planned in anticipation of being able to spend precious time at home. Home….where you can pee without worrying who will walk in. Brush your teeth without being interrupted and…
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gastroje….whosome? tube
Gastrojejunostomy Tube (GJ tube)….try saying that ten times fast. I’m still working on one time slow. I should probably learn how to say it. Because Samantha now has one. Samantha’s belly pain and persistent pancreatitis has told us that right now, her stomach can’t really handle processing food. So, for the time being, Samantha’s formula…
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Quick Update
Samantha and Bart are lying in bed watching Monsters vs. Aliens Samantha has been smiley, cuddly, awake and comfortable today….the first time in days. Her tum doesn’t seem to mind the hiatus She’s on an I.V. with a low dose of glucose so we can continue with the ketogenic wean. So far, no seizures Signing…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 