Category: The Samantha Years
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It Takes a Village
The other day, while in our 8th floor room, a volunteer came by and asked if she could anything. I thanked her and said “No, we are very lucky, we have a wonderful support group.” She nodded and said, “I can always tell by the look on parents’ faces if they are getting the support…
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"Monday is the key day of the week" Gaelic Proverb
So it looks like we could all be spending the night in our own beds on Monday pending that Samantha is fever free for 24 hours and she is back on her full feeds without any issues. I have made her fully aware of the challenge she has in the next couple days and being…
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O Bed! O Bed! Delicious Bed- Thomas Hood
Now, blessings light on him that first invented sleep! It covers a man all over, thoughts and all, like a cloak; it is meat for the hungry, drink for the thirsty, heat for the cold, and cold for the hot. It is the current coin that purchases all the pleasures of the world cheap, and…
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8th Floor Residents
So, we are back at Children’s. This time it was the ultimate tease…..we came in for an out-patient appointment and were sent upstairs three hours later. After hour two I started to have doubts that I would make it home in time for Entertainment Tonight….damn the electric fence. Samantha has another infection that we ‘think’…
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Air and Simple Gifts
Today I watched a nation regain hope, held a baby born on this day and cried for a man who would have celebrated our new future. To our new president, to baby Aliza and to Ralph…..thank you…these moments make us human and make us real. Changing of the guard It is with optimistic and hopeful…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 