Samsmom: Life, Joy, Loss and Loving your Mitochondria

This is our new addition to the household….

I find it quite Williams Sonomaish, don’t you?

This is Samantha’s home pulse oximeter. The top line is her oxygen saturation (100% is great!) the bottom line is her heart rate. 128 is a little high but not too bad. Overall, I am happy with these stats.

This machine is a little chirpy but after a while, I hardly notice it.

Samantha has had a tough two days. We’ve had seizures that have been a bear to control. After talking to Children’s Neurology and tossing some really good anti-epileptic drugs at her, it is really, really reassuring to hook her up to the pulse-ox and know that her heart rate is stable, she can maintain her oxygen levels and she is not completely snowed by these meds.

This information can keep us out of the emergency room and helps the doctors we talk to make better decisions about the next course of action. This all makes our new little friend a very lovely, very dependable, little friend.

Speaking of the emergency room, our little friends have also had a tough week. Monster Max , Cici and Jacob will be visiting Children’s tomorrow for various reasons. In the words of Max’s Daddy……

“You ladies need to find a new place to party!”

Agreed. We are hoping to miss this party but will have our dear friends in mind. Please send them all a little prayer or good thought…..heck, chicken feathers are good too 🙂

To an uneventful night for all……