Month: June 2010
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It’s All Good
Along the way you meet some really good people doing some really good things……. This is my friend Tami Almost two years ago, Tami lost her baby son Landon to a mitochondrial disease called Leigh’s disease. Tami decided to organize a walk in memory of Landon and to raise awareness about mitochondrial diseases. The walk…
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24 Hours
It has been quite a 24 hours…… We have been struggling with seizure control for the last ten days. Samantha would have a cluster of seizures, we would give her rescue meds, she would sleep for a day or two and then the seizures would come back. This is no fun for anyone. So yesterday…
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Very Superstitious
Today is my day to post for Hopeful Parents. You can read it here or check me out there! “How is Samantha?” I never answer with ‘she is good’ or ‘she is sick’, I always preface my response with ‘today she is good’, ‘we’re having a rough time of it today’. Because our life changes…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 