It has been quite a 24 hours……
We have been struggling with seizure control for the last ten days. Samantha would have a cluster of seizures, we would give her rescue meds, she would sleep for a day or two and then the seizures would come back.
This is no fun for anyone.
So yesterday when the seizures started up again, our neuro and I decided we would take her to the Emergency Room, give her a hefty dose of Dilantin, stop the seizures and go home on a new seizure protocol.
That was the plan.
It was a good plan and it involved us only being at Children’s in the afternoon while we did the I.V. med.
But Samantha’s seizures had a different idea and by 8:00 last night it was clear we wouldn’t be going home. When the seizures continued after two doses of Dilantin, two of Ativan and an EEG, it was clear we would spending the night in the PICU.
So, we hunkered down for the night and I prepared myself for another weekend at Children’s.
BUT, today the seizure activity has calmed down, her heart rate and oxygen levels have remained stable and our trusting neurologist has decided that the best place for Samantha to be is home.
So, we are going home! We have never been discharged directly from the ICU but I am not arguing. We are packing up, tip-toeing out of here and keeping our fingers crossed for a quiet, non-eventful weekend.
Hope you have the same 🙂