Samsmom: Life, Joy, Loss and Loving your Mitochondria

Life, Grief, Hope, Joy, Writing it Out and Loving your Mitochondria:

  • I love this time of year. The days are cooler, the leaves are beginning to blush, and my calendar notes practices and games. The Phews are playing football.

    Who would have guessed I’d become so invested in football? Certainly not me. The crack of helmets, the gasps when the wind gets knocked out, the unstated fact that kiddos get hurt, it still makes me cringe.

    Football.

    And yet, I love it. Because somewhere between the drills and the whistles, something remarkable happens: a community gathers. No one’s on their phone, no one’s scrolling through social media. Parents and kids line the fields, coaches shout encouragement, and teammates cheer one another on. For a couple of hours, everyone is fully present.

    Middle Phew plays flag football. MP is agile, fast, and strong, but still unsure if he’s ready for the contact of tackle. I get it, Middle Phew. For a while, his practices were on Friday nights, and I’d stick around to watch. Flag is lighter, more joyful, a little less pressure. The coaches will run a play against the entire team, tucking the flag into a hat or a shoe. Want to see joy? Watch a forty-year-old man with a flag in his hat giggling as a swarm of twelve-year-olds tries to catch him. It’s impossible not to smile.

    After practice, Middle Phew climbs into the car, cheeks flushed, hair damp with effort and slightly stinky. I hand him a sandwich from Snarf’s. Snarf’s hands down, makes the best sub sandwich around and we head to watch one of his brothers play under the lights. The drive is filled with talk of plays, teammates, life, music, school and snacks.

    By the time we reach Long Lake Stadium, the lot is packed. The air is cool, the field is buzzing, and the mountains hold the last traces of sunset. I juggle camp chairs, blankets, snacks, and drinks as we weave through the crowd to find the rest of our family.

    Then, for a moment, I pause. I take a deep breath. The lights reflect off the helmets, the cheers rise, and I’m surrounded by this small, beautiful chaos we call family life.

    In a few years, it will look different. The Phews will be driving themselves. Their friends will take up more of their time. Maybe they won’t need sandwiches or sideline cheering. The hectic will fade.

    Maybe I cherish it more because we didn’t always have this. Or maybe I cherish it because I know how quickly it changes.

    Either way, I cherish it.

  • On Friday, I plopped down on my therapist’s couch. It’s one of my most favorite places and after an eye-opening couple of weeks, I needed a place to process.


    My recent, abrupt dismissal from my side writing gig left me a bit sideways. While I was proud of how I held my ground, calling things as I saw them and not rolling over to be ‘nice’, I still had a lot to work out in my head. Much of my self-reflection led to a dreaded question I had to ask: “Is it me?”


    Is it me? Dismissed from two jobs in five months. I had to look at myself in the mirror and examine the reflection. I studied intensely, just as I look for chin hairs that are out of place. Sometimes 10x magnification just isn’t enough.


    My mind can quantify a lot, but the heart and the ego don’t quantify anything well. The ego bruises, the heart breaks, and like any soft tissue, they take time to mend. And in this world of cancel culture, it is easier to yell, blame, unfriend, shame, and walk away.


    I love therapy. We examined the times this has happened to me, a quick cancel. We examined patterns, including what I attract and what is attracted to me. We unpacked. And like any messy bag, unpacking can be cathartic, pulling out the items that have been festering and no longer serve us.


    I have been known to come in larger than life. At times, Milley Cirus has been my spirit animal…..I came in like a wrecking ball….


    Like any spark attracted to a flame, the initial fire is fabulous; it’s hot, it’s intense, commands attention, and is a tad explosive.


    I remember this fire after Samantha. I was a big ol’ bottle of lighter fuel just waiting for a spark. And that spark accomplished many great things over the course of a decade. It was fueled by intensity and the need to do something amazing, and we did. But when my Miracles for Mito partner and I parted ways, it left me wondering what happened to that glorious flame and sorting through the ashes.


    It was also the middle of COVID, and I needed something else. In came my writing gig. It wasn’t mine, but I was all on board with a salesperson/publisher determined to make her magazine huge. I was fueled by her fire and the love of seeing my name and my work in print.


    And in my last sales job, I came in with intensity, working at a fevered pace, consuming the accolades, determined to make a difference, held together by grand, big ideas.


    After my last letting go, I bought Brené Brown’s new book, Strong Ground, and joined a Pilates Studio.


    Something has been missing, my core. Those muscles that hold everything together, those that lie deep in our middle and work every day to keep us upright. Those muscles that cannot be built overnight, those that require consistency and repetitive hard work.


    ‘Intentionality and Consistency over Wild Intensity’


    Ugh- so boring! Daily mental and physical lunges and squats, and showing up at work to build a foundation, brick by brick, rather than blowing up a bouncy house.


    Bouncy Houses are fabulous. And they tend to blow away in a strong wind.


    We ended the hour at therapy. Yes, all of this happened in just an hour. My therapist looked at me, “I know this year has been hard, but this work? What we are doing here can be life-changing. Let’s go do some mental push-ups.”


    Push-ups. So terrible, unsexy, consistent, and intentional.


    1, 2, 3, 4, 5, 6………

  • I loved this t-shirt. It was circa 1985, Bruce Springsteen and the E Street Band. We had field seats, and the concert was amazing.

    I was 14 and wore this shirt proudly, along with my 14-year-old smirk and dark eyeliner.

    Bruce wasn’t my first concert. When I was in 7th grade, my mom got us tickets to the Jackson 5 at McNichols Stadium in Denver.


    Tickets were $50! Sooooo expensive in the early 80s! But she bought three tickets for me, my brother, and my Mama. I also got parachute pants because it was the 80s.

    I will remember Michael and Bruce for the rest of my life. So, when my SIL asked if I would take oldest Phew (OP) to a concert for his 13th birthday, I didn’t pause. “Of course. Let’s do this. Who are we seeing?”

    Central Cee at the Filmore.

    Central Cee is an English rapper. I had not heard his songs, but this was not about me. I made a Central Cee Spotify Channel and listened….until I couldn’t.

    Concert Day! I picked up OP and his friend, and we drove to Denver. Dinner first. We went to a local diner and as we looked over the menu, I asked the boys if they ever had a Monte Cristo sandwich.

    No.


    “It’s a deep-fried club sandwich,” I said, “it will change your life.”

    Phew’s friend ordered a Monte Cristo and a Mexican Coke, and he admitted. “My life is forever changed,” he said as he dipped a piece of fried club sandwich into the raspberry jam. Is there anything better? I think not.

    My work here is done. But not quite.


    The Filmore is a historic building that has been around since 1907 and lives on Colfax. It was converted into a concert hall in the 1990s. Colfax is known for many things: art, music, the homeless, and a street where you can buy almost anything you want.


    I kept my boys close. OP was wearing a knitted pink cap, in line with Central Cee rapper attire. As we walked down Colfax, a grizzled man on a bicycle passed us and yelled something we all interpreted differently.

    I heard, “I like your hat!”

    And I turned to OP and said, “Look how hip you are! He just said I like your hat!”

    OP rolled his eyes, “He said your mom is hot.”

    “OH! Really? He said I was hot?” I turned to OP’s friend and asked, “What did you hear?”

    They both rolled their eyes. “He said your mom is hot.”

    Well, look at me! Hot Auntie Mama cruising Colfax. That’s right. Your Auntie Mama is hot.

    We got into the Fillmore. Central Cee t-shirts were $50! I remembered Young Heather and her Bruce t-shirt. Yes, let’s get a shirt, 100 times yes.

    At the venue, I was neither cool nor hot. I was more like a bouncer for two kids who were loving…..loving seeing this artist. At one point, two taller young men got right in front of OP and his friend. I tapped these “kids” on the shoulder and told them to move; we were here first. They looked at me, rolled their eyes, muttered a word about Karens and moved on.

    That’s right! Don’t mess with the Hot Auntie Mama at OP’s first concert, I will take you down! I will take you down!

    The concert ended. Phew’s friend told his Mom it was the best night of his life.

    Well, that’s it, Hot Auntie Mamas work is done….I need a nap.

  • Yes, this title should be sung with Soul II Soul in mind, and the beat of Back to Life, Back to Reality……Yes, I know this is now firmly stuck in your head for the next 12 hours.


    You’re Welcome.

    Side note, did you know Caron Wheeler wrote that song after she had a near-death experience? I didn’t know this, but I’m storing it away for a random trivia night.


    Gosh, this week was tough, wasn’t it? And in the theme of the song, many of us are searching for what the new reality is. If we listen to the media, the reality is a little jarring
    .


    Wednesday was terrible. It really was. No matter where you side with Charlie Kirk, his death is another tragedy and another crack in the divide of our country. Our Evergreen High School had another shooting. I went to a funeral and said goodbye to Mrs. Adams, a Mama from my childhood and caregiver for Young Heather.


    And I got fired from my writing side gig.

    I say fired, but when you are freelancing, you are at the mercy of a publisher. In this case, we just didn’t see eye to eye on some things. On Wednesday, after 4 years of producing content, she looked at me and said, “I think we’re done.”


    And that was it. We were done. I say this knowing I wrote great stories. When I took this gig, a friend of mine said, “It’s like writing for the local newspaper. Everyone wants to be in the newspaper.”


    But after years of telling others’ stories, mine suffered. The other night, I sat at my computer, unsure of what to write if I wasn’t writing for someone else.


    Well, that is tragic.


    And as a result, this blog of mine has suffered. But more impactful is that I stopped telling my story, the story of my family, my thoughts, my interactions with the world. As I sit down tonight without an agenda, just typing away, I am reminded of my own therapy that is my written word.


    So maybe this site will get a little more love. Back to me. Back to Write.

  • I have not posted since November 2024. My last post featured a rider on a horse being unceremoniously thrown off as I talked about my terrible day.

    Looking back at the months later, I would have thought the horse was thinking, ‘HA! Hold my beer.’

    I didn’t write in this space for six months because I didn’t know what to write. Sometimes, life has a way of taking up all the space.

    After my post in November about the no-good, terrible, awful day, I went in for a routine mammogram. Two weeks later, I was asked to come back for another screening. That additional screening turned into a biopsy, which turned into two additional biopsies and a lumpectomy. Twelve weeks after my no good, terrible, awful day post, I was given the all-clear: stage zero cancer (that’s a thing!); continue with your life; sorry for the disruption.

    To be clear, I am grateful that they care enough to disrupt. But as much as I tried to keep a stiff upper lip, it threw me for a bit of a loop.

    I continued working during these 12 weeks. Working, trying to find revenue from the account we had lost. I would wake up in the middle of the night and think about where and how to find that next account.

    I stopped dreaming. Nights were peppered with anxiety. Days were filled with ways to prove my worth.

    On February 26th, I was given a clean bill of health and a nice two-inch scar on my left boobie.

    Two months later, I was dismissed from my job.

    I stopped writing here because I was so overwhelmed, which is ironic because I have gone through so much worse. I stopped writing here because I didn’t quite know who I was.

    As of today, June 8th, I have been unemployed for six weeks. It has taken six weeks, but I am slowly finding my footing—I recognize the person looking back at me in the mirror. I dream again. I sleep through the night. I am carving out hours for me.

    I swam outside the other day. The day was gray and overcast. Halfway through my workout, it started raining. Heavy raindrops hit my arms as the rest of me was submerged. Randomly, I started singing…….

    I’m swimming in the rain. Just swimming in the rain

    What a glorious feeling! I’m happy again.

    I swim and I smile, I could go another mile.

    Just swimming, just swimming in the rain…..

    Hello me. I missed you.

  • My latest new word is terrible.

    It rings well.

     The ‘T’ is sharp. It is significant without being confrontational,

    The double r’s can be rolled if needed

    And the last ‘ble’ leaves room for a long-winded ‘buulllll.’

    Say it long…….tttttteerrrrribulllllllllll

    Say it again: terrible, terrible, terrible.

    It’s nice, isn’t it?

    I posted on Tuesday that it was a terrible day.

    Some days need to be terrible.

    And that’s okay.

    And thank you for those who have reached out regarding my cryptic Facebook post.

    Tuesday was lined up to be a tough day. My Bro is struggling with his mitochondrial disease, and we were asked to attend a palliative care meeting.

    It was election day.  

    I had a big work meeting.

    Sometimes, I feel the need to test myself emotionally. Responsible Heather will look at my schedule, tell me I have taken on a lot and suggest that I move some things around.

    Hold my beer Heather will look at the schedule, say ‘Giddy Up’, fill up a 48 oz coffee thermos and roll out without any pants.

    Getting these two to agree is a constant battle.

    And then there is my Bro.

    Lordy. If you ask my state of mind, I will pause, laugh, and say it’s terrible. My heart breaks for my brother.

    I hate this disease.

    The other day I told my husband, “I hate that we are here again.”

    “But we never left,” he said.

    It’s true. Bro’s mitochondrial symptoms emerged in 2008….almost 16 years ago when Sammers was still here…..the long and winding road.

    We met on Tuesday at the Franklin Medical Center.

    I have said this and will continue to say this…..Palliative Care Meetings at the hospital are the worst! The chairs are terrible, the Kleenex feels like cardboard, the bathroom stinks of antiseptic and poo.

    Why can’t we meet at a pub and cry over fried pickles, chicken wings, and proper tissue?

    No, we met in a sterile conference room on the 4th floor of the Franklin Medical Center. I marveled at my Bro and my SIL, explaining super-hard decisions, situations, and care for each. This disease is taking control of my Brother’s body, and we cannot pretend otherwise.

    I held my Brother’s hand and cried.

    I left declining lunch. I had a super important business meeting. I tried to pretend I was super important but really got in my car and cried (again).

    For the record, crying in the car is the best. I recommend it quite often.

    In my super important meeting, it was announced that we had lost a big client, a client of mine I’d held for seven months.

    A client that was given to me with confidence and a side note, “This is yours, don’t f*ck it up.”

    I lost it. I f*cked it up.

    It’s hard when you f*ck things up.

    I remember the first time I saw my Bro. He was swaddled on my grandparent’s bed. For all the times everyone promised me a fun baby brother or sister, he looked like a tiny little, squirmy walnut.

    I was handed this tiny little person in 1974 with perhaps the same message, “Hello, Big Sister, here is your Baby Bro, don’t F*ck this up.”

    I have two caveats: 1) it was 1974 and someone really might have said that while they served us a baloney sandwich and tossed us in the backseat of a station wagon with no seatbelts while singing John Denver. 2) I must pause and acknowledge that my last two posts have involved extensive use of the ‘F’ word….but stay with me

    And hence, the terrible, awful Tuesday. I lost an account. I am losing my Brother.

    What was crazy is that once I learned about the business account, I started crying. Sobbing. Stupid business that I had no control over, while I walked out of the palliative care meeting perfectly composed.

    My friend put it in great perspective, “You can process losing an account, maybe everything about that day could be rolled into what you could process.”

    I came home. I cried and held my husband, and then I went to Costco.

    Have you ever been to Costco when you are really sad? I bought two puffy coats and twenty pounds of cheese. It was somewhat therapeutic. Come over any time- you will be warm and constipated.

    I came home and watched Trump win. And I watched the Republicans take the Executive, Judicial, and Legislative Branch.

    And my heart broke a little more

    I say this knowing my audience, and many of my loves voted differently than I did.

    I say this as a woman who gave birth to a stillborn baby, knowing now if I lived in places other than Colorado, I could have been convicted of murder.

    I say this as a sister whose Brother has a rare disease, not knowing how we will support public health and rare disease research to a new cabinet that does not trust vaccines or science.

    I say this as an auntie who will storm the field for my Littles.

    I will be back. I am back. Yesterday I went to my OB/GYN. After a blood test, I was told I am now in menopause- so bring on the cats and the magic potions.

    Tuesday was a terrible, awful day. But I know who I am. I know who I need to be. And in the words of Hold My Beer Heather…..Giddy Up.

  • I came in hot today. I didn’t mean to.

    I had packed banana bread and a thermos of coffee to be shared with family at my Phews football game. I showed up at the game a little late but not overly late- I was on time (ish) for my standards. I met Phew’s other Grandparents in the parking lot and extended an arm to help Phew’s grandma down the stairs.

    I was here, I was present.

    And then I got to the field. And I saw someone from the other team throw down a player from Phew’s team and toss him down again.

    And then I realized it was Phew.

    And. I. Lost. My. Poop.

    The Phews were once asked which relative said the ‘F-Word’ the most and it was resoundingly me. They shook their heads at the question like ‘Are you kidding? Of course, it’s He-He.’

    I saw Phew go down. I saw this big kid slam into him, and I lost it. I fuck!ng lost it. I let the F-Bombs fly. “Are you fcking kidding me? What the Fck? Open your eyes, Ref! Unnecessary Roughness! That’s bullshit”
    I may have tossed a couple more expletives in there.


    Of course, I said this right on the field, with my Pops, Phews, other Grandad, and many other families standing beside me. I was still holding the banana bread, a thermos of coffee, and an extra jacket (just in case someone got cold). But I wanted nothing more than to storm that field and give this other player the smackdown.


    And then Phews Grandad turned to me, “Heather, that was a legal play.”


    “Well, that’s some bullshit; that’s what that is.” And then I went to pass out banana bread and coffee. Because I may be many things, but coffee must still be passed.

    But I couldn’t shake the feeling. Eight hours later, I can still feel it in my belly. It was a hard game to watch- the other team was taller and bigger, they should have been in a different division, and the refs were terrible. I yelled and used all my f-bombs; I’m surprised I didn’t get kicked out.
    I wanted to play. I wanted to kick the poop out of this man-child team


    “Put me in coach!” I yelled out.

    They never put me in.

    Yes, because 53-year-old Aunt Hehe would have made a difference.


    My Phew played so well. It was a tough game, but he kept his composure, played hard, and blocked this 10-foot-tall man-child that looked like he should be in college.


    Phew never lost his cool.

    After the game, we were standing in the parking lot. A player from the other team walked by. Phew made a point to walk over, fist-bump him, and say ‘good game.’

    Holy snozz balls, I’m so impressed with this kid.


    I went home and did laundry. I find sorting socks quite soothing, and I needed a little downtime. I thought about me and my auntie-bear reaction. I thought about my family and my brother and how we all feel a little vulnerable right now. And I thought about this big decision we are making on Tuesday as a country and how all might feel a little ramped up, protective, and willing to storm the field to defend our young.


    And I thought about my Phew, crossing the parking lot to fist bump and congratulate the opposing team. He knew exactly who he was at that time and how he wanted to show up.


    Tonight, I am taking a page from the book of Phew, and I hope the country does too- no matter what the outcome, we can all cross the parking lot.
    Even if we do say a lot of F-bombs.

  • Oofta! This site has been neglected! My writing brain has been consumed with my side gig, writing for TWO local publications. It’s fun to see your name in print. And super fun when you get to write about the people you love.

    Nod to a Phew here. And nod to a sport that has earned my respect- here is one of my latest articles:

    It’s football season.

    Those three words make some of us giddy; the excitement of a game at Empower Field, cheering the Buffs, or following our favorite High School player, many of us wait all year for this time.

    In early August, you can find coaches Tim Sexton, Joel Diebel, Seth Guenther, Matt Reinick, Chris Gregoire, and Chris Slape on a field in West Arvada, surrounded by about 30 enthusiastic middle school boys ready to play football. They are the Arvada Youth Wildcats and they have been waiting since they made the playoffs last November to play again.

    Finally, finally summer is almost over and it’s football season.

    Coach Sexton watches as the boys do push-ups and burpees to warm up. “We’re all dads with kids on the team. Some kids have been playing together since they started flag football when they were six. Now here we are, it’s been fun to see the team evolve.”

    Tim grew up in Arvada, played football for Arvada and went onto play for UNC. He’s known some of the other coaches since high school and played against them on rival teams. There is usual banter; Arvada vs. Arvada West, who really was the better player, and who now is better looking. But when it comes to coaching and instilling a sense of pride for their team, the Wildcats are all on the same page.

    “Coaching a team, coaching kids, coaching colleagues, it’s a similar philosophy. Hard work pays off, know your goals, focus and work towards those goals,” says Coach Sexton.

    Life skills are taught on this field. Collaboration and communication are essential. All players need to know not only their role but where each team member is supposed to be during a play. “Egos are checked at the door. When we’re here, we are all part of a team with one goal.”

    Good coaches are fundamental to this process and the Wildcat coaches know how to balance each other out. “We have very different personalities. Some of us are tougher on the kids than others and that works well for certain players and at times we all have to be tough. We want to equip these kids with the tools to get through those tough times on the field and in life.”

    Warm up is over and practice starts. Offensive teams go with the offensive coach and Defense heads off to their part of the field. Each coach knows each player and provides feedback; where they need to be, what’s not quite working and what they are doing right. Players listen intently, learning the consequences of their actions, both positive and negative.

    “We want all of our players to be successful. If they don’t know what to do, we need to look at ourselves as coaches.”

    90 minutes is over, and the team gathers together to talk about what went right and where things need to improve. Coach Sexton, Diebel, Guenther, Reinick, Gregoire and,  Slape call out players that had a good catch, a good tackle, a great assist. And everyone cheers for that person.

    At the end of practice, these 13-year boys walk off the field carrying their helmets, they fist bump and high-five each other. They are tired and smell like 13-year old boys.

    And they can’t wait for the next practice.

    And that is why we love football.

  • 2023 was fun. I didn’t know it would be fun but the culmination of 365 days turned out to be pretty amazing.

    There are many quotes about it being never too late to invent, or reinvent yourself. This last year, I really tried to be serious about my writing. Not just writing about me, and my grief and my story and my………….

    But writing about you. And your story. And what makes you get up in the morning.

    Turns out, I might just be okay at this. When I look at 2023 and hundreds of pages of content, my most proud moment was when Catholic Charities of Baltimore trusted me with their year-end appeal. Here is my letter on behalf of Catholic Charities.

    This organization is amazing- they serve so many in need. I was very proud to tell their story.

    Onto 2024! Need a Freelancer? Happy to be your person 🙂

  • I love my side writing gig. It is a thrill to put community stories to print, especially when you get to write about Paralympian Zach Miller.

    Keep being awesome Zach!

  • Hi All! I had the honor of writing about one of my favorite nonprofits MaxMods, in a local publication. Here are the great things they are doing to bring the Holidays to everyone 🙂 You can donate at http://www.santaslittlehackers.com

  • As I have been called upon to deliver the Phews to multiple events, my character has come into question.

    Apparently, I drive too fast.

    I’ll take this. I’ll hand it back with the fact that everyone else drives too slow. Not you. You, dear reader are a great driver.

    But yes, everyone else drives way too slow.

    And then there is the question around my language.

    I guess I say the F-word.

    A lot

    There was a vote among the family……Who says the F-word most often?

    And I won, or lost. Apparently among all of the adults in the family, I say the f-word most often.

    “What the F$ck?” I said to the Phews.

    No really, I didn’t say that…..but I really wanted to.

    Instead I said, “Well goodness gracious, that’s a shocker. Whatever could have come to that decision my little muffins?”

    Okay, I didn’t say that either…..but somewhere between the two came the truth…..

    “Really? I say it more than anyone else?”

    “Yes.” Said all the Phews.

    “No kidding?”

    “No kidding.”

    And I had two thoughts. One thought was that I needed to curb my vocabulary among the Phews.

    Second thought? Fuck it. When I think of how I want to be remembered…..the creative use of the F-word may not be a terrible way to be memorialized.

    And yes, everyone else drives way too slow.

  • My family huddles well.

    Sadly, I believe it’s because of years of practice, but we do this well. We lean in, call in reinforcements (thank you!) and try, as best we can, to help each other out. It is here that I am always reminded of what family is- it is here that I find who we are and the glue that bonds us together is solidified.

    In the last month, I’ve spent some time with the oldest Phew. We are right at the cusp of boy-hood and teenager-hood and man-child and all of the things that clingy Aunties are not good at. Oldest Phew (OP) is growing up.

    My job as of late is to take OP to football practice. We have bonded over music that gets you ready for football practice. Eminem, Kanye, Drake……angry music that I love but triggers my Auntie radar….just a bit.

    We pull into the practice parking lot; OP jumps out with his football gear. I gather myself, turn off Eminem, get my thermos of tea, extra coat, foldable chair and try my best to be cool.

    You only get one shot, do not miss your chance to blow. This opportunity comes once in a lifetime, yo.

    Yesterday OP and I went to the Bronco game. Denver lost but we had a great time. OP studied the starting line, recited stats, called plays, high five’d. We each got pizza and a giant lemonade.

    I sang karaoke to Vanilla Ice….because I still try my best to be cool. Collaborate and listen, Ice is back with my brand new invention

    Walking back through the post Bronco game crowd is nutty…..lots of hyped-up people who may have been over-served in the last 6 hours. We got to our parking lot and there was that guy. That angry drunk guy…… that guy who picks fights with people who just want to get home in time for 60 minutes. That guy was yelling at another car, pounding on the windshield…..I steered OP in the other direction.

    We jumped in our car….”hang tight Bubs, lots of people making some bad decisions here.”

    And we lined up to get out of the parking lot.

    Angry Guy jumps in his Subaru, backs up 6 inches towards my car and tries to cut me off.

    I honk.

    Angry Guy starts an animated non-verbal conversation aimed at his rear-view mirror.

    Angry Guy is drunk.

    I take a picture of Angry Guys license plate. Fortunately, Angry Guy has been such a douche, I have many witnesses in my favor. But Angry Guy is hating me- OP and I watch barrage of hand gestures.

    Perhaps Angry Guy realizes if he continues, he is going to draw more attention to himself from authorities.

    This would not bode well for angry guy.

    So he pulls to the side and lets me pass. I forget my window is rolled down.

    “YOU’RE WELCOME!!!!” Angry Guy yells.

    I don’t acknowledge but try to navigate the line. Angry Guy cannot contain himself. He gives his middle finger a kiss, points it at me and yells out, WHORE!!!

    Whore? Well, let’s take it back it up…….I’m a 52 year old, white haired woman, driving an SUV with a child in the back. I could represent a lot of insults but this one? Okay.

    I yell back, “Seriously. Knock it off. My kid is in the car.” Ironically, this shuts Angry Guy up.

    OP and I continue to navigate traffic. I explain that I engaged a bit too much with Angry Guy. I should have ignored him.

    “Are you okay that I called you my kid?”

    “Well yeah….you’re my Aunt…”

    “Thanks buddy. It takes a village.”

    Would I have been uglier had OP not been in the car? Probably. I can go Ape Poop with the best of them. But every time I wanted to toss an F-bomb I was reminded that someone was watching- this kid who I adore and someone who I always want to be my best self with.

    The best way to be cool was to be cool.

    Thanks Kid.

  • Mitochondrial Awareness Week is coming to a close and I am late in posting. This is not to say this week, and this disease has not been on my mind. Like many times before, this stupid disease sits in the corner of my life, farting and belching, creating a stink, and reminding…….

    I have often said this disease could suck my big toe.

    Which is ironic….

    The big toe thing.

    Mito symptoms present in so many different ways, seizure, muscle weakness, tummy issues, heart issues…. you never know which cells and body systems will be impacted.

    One issue for my Bro is nerve cells- he has quite a lot of neuropathies in his hands and feet.

    Think about your hands and feet. I am thinking about mine right now as my fingers tap my keyboard, my foot kicks absent-mindedly at the edge of my desk. The nerves in my hands and feet remind me when I kick too hard or do something awkward.

    ‘Ouch, that hurts.’

    Our nerve endings protect us from ourselves.

    We learn at an early age that the stove is hot, ice is cold, we have to pick up our feet or we will stub our toe. But when you no longer feel anything at the tip of your toe or on your little pinky finger, you don’t realize when you damage those tiny, fragile appendages.

    Bro can’t really feel below his knees. That’s a lot of body to maneuver without feeling. Feet get heavy and hard to lift, or they lift too fast, and toes get stubbed, again, and again.

    Or, a toe gets broken, but that toe can’t feel anything, so that toe can’t tell you it’s broken.

    Bro’s Toe broke a couple months ago. But because the communication between Bro and his Toe is also broken, Bro’s Toe couldn’t yell loud enough to be heard.

    And like many unheard toe’s, Bro’s Toe got infected.

    Infections are terrible, intrusive beings. And like any unheard infection, the one in Bros Toe moved, squirmed, bartered and manipulated its way into the bone.

    Big Toe Bones don’t like to be infected.

    Bones don’t like to be infected. And as much as we would like to think that our bones are hard and calcified, bones are quite vascular and dependent on blood flow.

    And because infections like nothing more than to spread to other area like further bone and vascular highways……. the infected part of Bros Big Toe needs to go.

    Adios y vaya con dios.

    This Little Piggy went to…..

    And I joke. Because this is what you do when this sucky ass disease that can suck my big toe infects Bros Big Toe.

    You tell Toe jokes.

    In all seriousness and support, Bros Toe goes on Tuesday and Bro will be non-weightbearing for a while.

    All toe jokes, toe memorials and words of support can be posted here or on social. Bro would love to hear how much you will miss Bros Big Toe.

    Please PM me if you would like to help in other capacities. I will be setting up ways to help soon.

    Love this tribe.

    And this disease can still suck my big toe.

  • Something happens to the older sibling.

    We don’t ask for it. We don’t really anticipate it. But somewhere in our early life, someone plopped a squirmy, warm little cherub in our lap and said that this was our little sib and it was our job to make sure they made their way in life.

    Which is natural.

    Not.

    Because really, we’re like 2, 3 maybe 4? And this little person is set in our little laps.

    And we don’t know enough to question.

    But everything set before us had a reaction to an action, we push it and it squeaks, we hit it and it lights up, we bite it and it tastes good.

    And our parents set their next precious little in our lap.

    Push? Hit? Bite?

    “No, love your little brother, give him a kiss.”

    Love? We really haven’t figured out the potty but no matter.

    And the Grandparents flash the kodak camera and go smoke a ciggy.

    Because it was 70’s and anything goes.

    My Little Bro was plopped in my lap at 1974. To give the elders grace, they did make sure your diaper was clean, that you were fed, and your head smelled good.

    They also knew I was a pro at going wee in the potty and not on the baby.

    Well played 70’s parents.

    Well played.

    Your head smelled amazeballs….better than it ever had in future scenarios. And I was hooked.

    You became my little brother.

    I became your big sis.

    And that was it. Forever in my life, once you were plopped in my lap. I am your keeper.

    A keeper in the late 70’s, early 80’s meant that there was cereal in the pantry. That the milk had not turned, that someone had the key to the front door.

    That we had a quarter to call a friend…..or play PacMan, your choice.

    And we did it. Us two. Our young parents got divorced. It was a bit ugly. The dog died.

    But we still had cereal. The key still worked. And somewhere along the way, we found our way.

    You found football. You found it at a young age and I watched this kid who wore plaid pants and a striped shirt turn into a confident kid. A cool kid. An Athlete. You bloomed.

    You showed up at my University.

    At 16 you announced yourself at a fraternity party as Ryan from University of Washington.

    People asked if I had met the guy from UW. Seriously?

    He’s my brother. He’s a sophomore at Highlands Ranch High School. And no Kelly, you cannot hook up with him

    Didn’t matter Little Bro. You are unstoppable.

    Homecoming King, NOLS graduate, Winter Park Jr. Ski Patrol, Gonzaga Crew, best freaking friend, the most amazing dad, loyal brother.

    A friend of mine called you James Bond. Of course he did.

    And now we are here Lil Bro.  

    Today, after 13 years of battling an adult-onset mitochondrial disease, your electric wheelchair is on it’s way.

    And after 13 years, I think I am ready to truly tell your story if you will let me.

    Ryan, you are amazeballs, and your head still smells kinda okay.

    And your boys are good humans….but their feet smell…..seriously.

     And I am your big sister- making sure the milk has not turned.

    But Life has turned, as it does. Keep being unstoppable.

  • I disappeared in May.


    I disappear often, which can be a tad frustrating to my tribe. I emerge unpredictably like a rabid squirrel, looking around, wondering where everyone went, only to hear their reply.


    ‘We thought you had left.’


    And I do leave, but I always come back in some unpredictable form or another.


    May was sad and awesome and promising and funny and hopeful all in the same month.


    Thank goodness for 31 days.


    I quit my job in May. I know this is the third job in two years, but 52-year-old Heather is searching for a place to be…..may this next job be my place.
    Four days after giving notice, I had a medical issue. An issue in my lady parts. This issue was a bit jarring, and when explaining the whole situation to my mother, her first response was, “Please don’t post this on Facebook.”
    Is my blog Facebook? Not really.


    So to make this version a little more PG, my Lady Parts will be referred to as LP moving forward.


    LP and I had an issue that needed to be addressed quickly. I don’t know about you, but when a problem comes up in that area, I feel like I have done something wrong. Terribly wrong. I dated the wrong boy, used the wrong towel, sat on the toilet seat. Somehow, married at 52, this has to be my fault.


    It did not help that LP and I visited my doctor and she requested surgery at the Anschutz campus immediately. I called Hubs and cried. We packed a bag and drove to Denver.


    I love that Hubs dropped everything. While driving down, he mentioned that it reminded him of Samantha days when nothing mattered but her health. I cried again.


    This was the fifth time this year that I have been under general anesthesia. I hate going under. Me, like my daughter and my grandmother, have been dubbed the ‘Keith Richards of Anesthesia.’ I wake up immediately talking of grand ideas, mashed potatoes, and offering to push my bed back to recovery after a knee replacement.


    I’m a hoot.


    LP surgery was successful and was followed by my least favorite holiday, Mother’s Day.


    I pulled through like a champ.


    Graduation weekends were next. Jack would have graduated this year. I was cautious. I picked where I wanted to be, thought through reactions, tended to my LP, and thought I would be okay.


    Silly Rabbit.


    I think when you are dealing with hard stuff, you should reserve a day in your life to lose your poop….like, really freaking lose it. Ugly cry, grab your keys, jump in the car, turn on the Smiths, and just drive. May 21st was my day. I drove northeast. I have no idea why Greeley, Colorado, was appealing, but that’s where I ended up.


    And I cried.


    I cried again for a life that is not ours, a club of proud Mamas with graduating seniors. A club I will never belong to.


    I cried for me, trying to make it okay when it is so wrong.


    I found myself at a church in Mead, walking the labyrinth and ending up at the feet of Mary. She was carved out of marble. Her feet were smooth, barefoot, and unassuming. We sat together and watched the sunset over the mountains.


    LP and I returned home. Bruised, broken, tear-stained but no worse for the wear.


    Hubs and I left for California two days later to celebrate our nephew’s wedding.


    Life does go on; fiercely yet slowly. It crawls, it runs, it hits you by surprise, and it knocks you sideways. Demands you remember, just when you thought you forgot.


    And all you can do is embrace it, you and your broken LP, sitting at the foot of Mary, watching the sunset over the mountains.

  • Yesterday was Mother’s Day.

    Mother’s Day and I have complicated relationship.

    I love Moms. I love my Mom, I love my friends who are Moms, I love the people who have Mothered me along this road of life. This tribe of women has influenced me, held me on high, approached me with truths at times hard to swallow. We are all in one way or another, continually raising each other.

    It is a sacred, magical, heartbreaking place.

    It is May and in the next couple weeks many of my dear friends Littles will graduate from high school. I love these kids. I love seeing the young adults they have become, the promise, the glow, the future that lies ahead for them…..

    Jack would have graduated this year. I vacillate between dreaming of life that was not ours to live and how the hell could it have been 18 years since so many of my friends and I took that ClearBlue Pregnancy test and realized that our lives were going to change forever.

    But we really didn’t realize how our lives would change…..did we? We dreamt of cute snuggly onesis, the best breast pumps, the perfect color to paint the nursery, we lived in dreams fueled by expectations, promises held by a plus sign from a $12 pregnancy test.

    Along the way, in these 18 years of life, motherhood held us to the very highest test. We would lose Littles, we would lose Mamas, we would make heartbreaking phone calls. We would huddle and hold each other closer.

    And as Littles now go off to find their own world, their own space; what is left is you and I, cheering them on from afar, watching the sky to see what direction they take. Watching in joy, at times in fear, and anticipation as they make their way.

    We are all in one way or another, continually raising each other.

    All this from a $12 pregnancy test.

  • I’m a tad late to the party but I could not let today pass without wishing you all a Happy Rare Disease Day!

    A rare disease is a condition that impacts less than 1 and 2,000 of us.

    Did you know that between 3.5-5.9% of us have a confirmed, diagnosed, rare disease? We are 1 in 2,000. Some of us are 1 in 200,000, some of us are 1 in 2 million, or 1 in 200,000 million.

    There are 6,000 known rare diseases and 72% of those are caused by a genetic mutation.

    Our mutation comes from the POLG1 gene. It is more common among mitochondrial deviations- it is suspected that 2% of us are running around with a POLG1 mutation and many of us don’t even know it.

    Being mutated is no cause for alarm! Like all evolving beings, we all carry genetic mutations. W

    e are all our own genetic X-Men. It’s when those mutations become disease-causing that things go awry. And because families share the same genetic soup, disease causing mutations can be far reaching, impacting multiple generations with devastating results.

    My beautiful, rare Loves:

    The crazy thing within our family is that Rare is that it has made us…….Rare.

    This blended family huddles when needed. Holds each other close, rally’s, never leaves an event without saying ‘I Love You’, cries openly, and hugs a little longer.

    But we will all say, resoundingly, that being rare sucks. We have endured life-changing losses, ugly cried and cursed the heavens for this sucky genetic lottery. If we are the X-Men, I’m waiting for my proverbial Wolverine.

    Rare Disease Day is about families like us. Families searching a cure; collaborating, advocating, fighting for a cure. There are 300 Million of us……suddenly rare is not so rare.

    To a cure.

  • I once told a coworker I needed to marry a skier.

    She told me I was being superficial.

    “Marriages are based on more than that.”

    We no longer stay in touch. But I did, indeed, marry a skier.


    My favorite days with Hubs are on the mountains- it is my happy place, it’s his happy place, and I am so grateful we share this. Mountain vistas and powder are a love language.


    We had dreams of bringing little skiers into this world.


    We did not bring little skiers into this world.


    But we did get nephews……poor little nephews who had absolutely no idea the skier expectations from their aunt and uncle.


    And then I realized that teaching kiddos to love skiing is hard. Really hard. It’s filled with early mornings, cold hands, sore feet, hauling gear and thoughts of ‘why are we doing this?’ from both adults and kiddos.


    And then they get it, just when everyone is about to give up; the feeling of flying, the magical ‘shoosh’ down the mountain, the cries of ‘whhhhooooopppppeeeee’……and your Auntie heart grows ten times; ten times by ten.


    My auntie heart grew ten times this weekend. Our youngest nephew, the one we weren’t quite sure if he would love skiing, fell in love with skiing. Like any love affair, this process was fraught with uncertainty, a little fear and finally, joy.


    Some of this may have been my fault.


    Youngest Nephew (YN) and I were skiing on Saturday- it was time for lunch and we started making our way back to the house for a sammie. The road back was a blue run aptly named ‘Home Again.’ Another skier told me it was a mellow blue, something we could easily manage.


    Pshaw.


    The first couple of turns were just fine and we slowly made our way Home….Again. We stopped as the road curved and the slope seemed to disappear, meaning it’s a bit steep. Holy Schmoly, not only was it steep but it twisted sharply to the left; over the curve was the ski area boundary and a significant drop-off.


    I may have whispered an F-bomb or two.


    The nephews call me Hehe, a nickname I love but when YN whispered, “Hehe, I’m kinda scared.”


    I may have whispered another F-bomb.


    “Buddy, I get it. But I am not going to let anything happen to you and we are going to get down this.” I told myself to pull it together and placed YN between my skis. I made a giant wedge from hell and we slipped down what was supposed to be ‘a road’.


    We got down the first pitch.


    “I think I need a rest,” said YN. And so we rested for a bit.


    Home Again continued, slip, ski, rest, thank my doctor for a great new knee, kiss my gigantor quads. At one point we sang “You are my Sunshine” which was Samantha’s song, which made me cry, so we rested a little more.


    It took us an hour to get Home Again. At the end, the road finally mellowed a bit and YN found this tremendous confidence. He was skiing, stopping, singing, and giggling.
    We got to a fork in the road and took a rest. “Buddy, I am so stinkin’ proud of you. That was hard and scary, and you did great, bring it in.”


    We exchanged a big bear hug. “Yeah, that was hard but kinda fun. I knew I could do it.”


    He skied to the house just in time for Hubs, Popsie and his big brother to see his amazing finish. They cheered as he came to a perfect pizza stop. He casually took his skis off and went inside for a turkey sandwich.


    I took my skis off and collapsed in a ski bank. Popsie found me later, “You okay, Hehe?”


    We did not do Home Again, again, instead we did laps on a wide, very open blue run until the lift closed. When the slope mellowed, YN would tuck and put his arms behind him. “Whatcha doing, buddy?”


    “This is how all the fast skiers ski……..Whoooopppppeeeeee.”


    There are moments in life you will remember forever. This was a moment; when YN and I made our way down Home Again.

  • Ahhhhhhh. Happiest of Valentine’s Day dear tribe!

    On this day, I want you to know that I love you.

    Truly.

    In the words of great 80’s icon Howard Jones, ‘What is love anyway? Does anybody love anybody anyway?”

    I say yes, HoJo. Yes.

    Inspired by this song, I looked up love in the dictionary.

    LOVE:

    • A strong affection for another arising out of kinship or personal ties
    • Attraction based on sexual desire (easy there Webster)
    • Affection based on admiration, benevolence, or common interests
    • Warm attachment, enthusiasm or devotion
    • To Cherish
    • To Thrive

    My favorite is to thrive……love….love makes us thrive.

    I LOVE spending time with you. I LOVE my community….,,you…..you help me to thrive, to grow, to reach beyond who I am.

    Love is a connection.

    And what are we without that?

    Valentine’s Day promises us chocolates, flowers and fancy bling.

    I hope you find more……a hand to hold, a friend to call, a sacred moment to yourself…..a hand written note…..connection.

    Happy Valentines Day dear tribe. Much love.

  • I love New Years.

    I love Vision Boards.

    I sit on the floor surrounded by old magazines, a pair of scissors, puffy paints, glitter, glue stick and stickers and create a vision for your next year.

    I know. Super Cheese. I spent three hours today Vision-Boarding my next 365 days. And according to my vision board, 2023 is going to be amazing.

    I say the above with about 50% jest. I do honestly take this time to think about what worked and what didn’t work last year. And although I might not change, I ask myself what I want to focus on in this next year? What can help me get there?  I pull out quotes, memories, reflect and dream.

    It’s a lovely ritual- a needed break from the Christmas frenzy.

    I always finish the holidays slightly askew.

    My life is strewn about like remnants of ribbon and wrapping paper, munching on a green sugar cookie in the shape of a sock, wondering where things went wrong after Halloween.

    This is my time to reflect and regroup.

    2022.

    Recover

    For me and my tribe.

    From a major surgery- to finishing 2022 in my happiest place, knee deep in powder and pain free.

    To our community recovering from a fire that tore through our town

    For a friend reeling from an unfathomable loss

    Recover.

    It takes time to recover. It takes reflection, a focus on healing, an eye on hope. A belief that our worst times will not define us.

    Recovery takes our loves raising us on high.

    And raising our loves in return.

    It took three hours, 8 magazines, and a bottle of glitter glue to pronounce, reveal and reflect on this year and bundle it into some sort of package.

    Recover.

    Sometimes recover is peppered with platitudes; ‘bounce back’, ‘stronger than ever’, ‘overcome’.

    But what if recover is coupled with time, relax, regroup, meditate, lean in, search, listen, embrace imperfection.

    2022 taught me a lot. I lift my head above the garland, tinsel, leftover sparkle and greet the New Year with an extended hand

    To the opportunity to recover and the gift of another year.

  • I do love Thanksgiving.

    I love hosting Thanksgiving, gathering around a meal, the challenge of a massive bird, a holiday that has only one objective…. dinner….so you better get it right.

    My Thanksgiving is never perfect, there is always one dish that goes awry and the meal is always late. This year cooking a 21-pound turkey turned out to be an experiment in heat conduction and a quick dissection/ biology class. The kitchen is still covered in a thin film of turkey, and I think I see whipped cream on the ceiling.

    No matter. Dinner was served.

    Around mid-October I dove into my Pinterest account to see how whimsical, and Thanksgiving-y I can possibly be. The night before Thanksgiving I am wondering what mid-October Heather was thinking.

    I did manage to create this little gem

    Behold the tree of gratitude!

    It’s kind of like the Festivus Pole- although there was no airing of grievances.

    But there may have been a Feats of Strength! I’m still not sure who won the ‘Old Guys vs. Kids’ football game.

    After the last piece of pie was served and the turkey was tucked away, I had a chance to read through the Tree of Gratitude- I love what my amazing Turkey Day Tribe was grateful for:

    • My Cousins
    • Friends and Family
    • Family, cats and bread: seriously….I cook a 21 pound bird and bread???? Alas, second graders.
    • Bread- Again. Bread- next year I’m setting out a pack of Hawaiian rolls and letting you all go at it.
    • Bread, not school
    • Heather! Aw……I don’t know who I bribed but the check is in the mail.
    • True Friends- and my daughter
    • Friends, family and health
    • Getting together with everyone
    • My body’s ability to move
    • Being surrounded by love, great food, being in a beautiful home (aw, thanks) and good health

    Bread clearly is the winner- but I think my nephews and their cousins hijacked the tree.

    During dinner, I stood up to toast, surrounded by family; Hubs, Mom, Dad, Stepmom, Stepdad, Brother, SIL, Besties……

    And I had to take a moment and shed a tear.

    We are far from perfection or the family you want to emulate….at times people have looked at us with one word…..oof.

    But at that table, surrounded by family, love and (of course) bread……the word gratitude is not enough.

    Whatever the word may be, may your holiday be filled with it.

    Happy Thanksgiving Dear Tribe.

  • Hey Dear Tribe:

    This weekend finds me at a Writer’s Retreat. Here’s a little something that has been brewing:

    The Heart, the fearless worker.

    The committed soldier with one job.

    Keep it going. Work the pump

    From the first sign of life to the very last beat.

    The heart carries on.

    Steadfast, determined, unthinking, unemotional, the heart.

    Contrary to our love and lore, the heart does not get lovesick.

    The heart does not break after a torrid affair.

    It is not heartfelt, whatever emotion you seek cannot be found in the bottom of your heart; your heart does not desire.

    But buried deep within its chambers, encased by bone and cages of rib, deep within the chest, the heart carries on.

    Keeper of the blood, mover of life, the heart has one job.

    When the brain is sad and tired, pockmarked with trauma and emotion, the heart beats.

    For the broken sad mind, the heart is relentless, unshaken by tears, unencumbered by emotion.  

    A world may be shattered but a heart carries on.

  • I had a ridiculously fun weekend. I danced way too much for my poor new knee. I sang loud and off-tune. I gave my nephews sloppy kisses. And I found myself back in the beautiful mountains so close to my home. It was a joyous weekend.

    Ridiculous Joy is a funny, lovely, unsustainable thing. Sunday night I iced my knee and tucked myself into bed. Monday morning found me trying to fit back into a schedule with the sweet scent of the weekend still in my head.

    Ah- Joy.

    I try hard to find joy.

    And I must confess, I think lately we as a society look a little harder for joy.

    I was talking to a friend today as we discussed the quest for joy.

    “I had my life in 2019 and then Covid came along. And I hunkered down and waited for my life to return. And now we are back. But some of the things in 2019 that worked, no longer work. I ironically find that I must reinvent myself yet again.”

    Reinventing is fine but it must be recognized and attention must be paid. Where do we find our joy? How do we find our joy? The Rowdy? The Quiet?

    As I left for the weekend, I checked the stove again and turned off the water. I locked the door and armed the alarm and I realized that I’m a little more anxious about leaving home.

    Home.

    Home which had become a safe sanctuary the last couple years. Home- where after 50 years, I found joy in the quiet.

    And I left it to embrace the rowdy joy of sloppy kisses and dancing crowds.

    Tonight it is quiet other than a very persistent cricket. The sun has set and their is a hint of Fall in the air. The sky is peppered with orange and purple clouds.

    Perhaps joy is not fleeting- perhaps it does not have to be rowdy or quiet, it can be both.

    Perhaps joy can be found where we take time to recognize it.

  • This is a great song by the Pixies if you have a chance to listen.

    It’s been a while since I have posted.

    A new knee and six weeks of rehab since I have posted.

    And where is my mind?

    It’s better….but I have learned quite a lot about myself along the way.

    When you recover from surgery, you spend a lot of time with you. You in a compromised state, you in pain, you not being able to swim, you waking up in the middle of the night, you and your crazy head.

    I’ve had surgery. But this surgery has been pretty intense. I told this to my surgeon the other day and he did confess, “well I did take a saw to your leg, didn’t you watch the videos?”

    No, no Mr. Surgeon. This would not have happened had I watched the videos.

    And six weeks out, I am happy to report that I hiked two miles yesterday. I am healing. I will be back.

    Two days before Mr. Surgeon took a saw to my leg, a friend asked my how I was doing.

    “Not great,” I said. “I’m nervous about Mr. Surgeon taking a saw to my leg to remove my knee. It’s three days before Samantha’s birthday. I can’t be at the Courage Classic. I had to move this whole thing because I got stupid Covid. The last time I was so vulnerable was when I was put on bedrest because of Jack and we all know how that ended.”

    Where is my mind?

    Oof! I know you all are thinking…… never, ever ask Heather how she is doing two days before surgery.

    And in the process, I have once again had to lean back on you…….and I thank you. The meals, the notes, the flowers, the cookies, the texts on Samantha’s birthday and (ironically) the week later when we lost her………the kidnappings so Hubs got a break, pizza dates with Mrs. PacMan, and an 18 year wedding anniversary with a new knee.

    I could not do this on my own.

    And I thank you.

    This weekend I hiked 2 miles with amazing friends. I may have danced to a Grease sing off……

    Summer Lovin’ had me a blast…..

    No, I really did NOT have me a blast this summer.

    But ya’ll got me through….even if you did not know it.

    And for that dear tribe, I am grateful.

    thank you.

    This may or may not have been before the Grease Sing Off 🙂
  • SamsMom 2009

    13 years ago my life looked very different- it was the Summer of 2009, Samantha was on day 14 at Children’s Hospital and I was trying, very, very hard to train for the Courage Classic. I would ride from the hospital. I took the elevator from the 8th floor in my helmet, cycling shoes and super-flattering bike shorts, grab my bike from the car and take a cruise around scenic Colfax and 225.

    Samantha was sick. Thursday before the ride she was still in the hospital and my chances to ride looked iffy. On Friday evening, we were finally discharged, with the caveat that if anything looked suspect, we would head back down the mountain.

    We unpacked that Friday from the hospital and packed again for my ride.

    We left Saturday morning at 5:00 to drive to Copper.

    I got a migraine an ugly bout of diarrhea on the way up the mountains.

    I don’t know why this ride was so important. But it was. Perhaps it was my time to prove I was still alive. I had spent months in the hospital with our girl. I needed to climb a mountain. I needed to find my breath.

    I rode the entire tour.

    Upon our return, Samantha ended up right back in the hospital.

    But I did it.

    And I sobbed when we finished.

    Since 2009, this team has raised over $1MM for the Mitochondrial Clinic. Yesterday I sat at Panera with our doctors and they stated, quite clearly, “The goals we set ten years ago have become a reality. This money from Summits has made it happen.”

    The Summits team will ride on Saturday.

    They will ride without me.

    This year, I am the patient.

    I am a grumpy, self-pitying patient.

    It was hard to bow out. It’s hard not to be up in Copper with the people I love.

    It’s hard to put my knee ahead of my FOMO.

    It’s hard to put my knee ahead of the feeling I get when I climb these mountains, when I find my breath, when I see my girl in the vistas.

    This year, I am the patient.

    Because this year, I no longer feel strong when I climb. A bike dismount is followed with concern that my knee will support me. A ride is coupled with a struggle to climb the stairs the next day.

    Maybe I’m back where I started 13 years ago. Needing to find my breath again, prove my strength, find my moxie.

    It takes Courage to know where we are and what we need.

    This is what I am telling my grumpy, self-pitying me…..that she is courageous.

    I still don’t know if she is buying it.

    But next year will be different.

    PS- I am still fundraising for our clinic! You can donate here!

  • Privileged, empowered, white, upper middle class, 50ish female. This is me.

    You could call me a Karen…although I hate that term and feel bad for my friends named Karen.

    It could have easily been a Heather meme instead.

    “OMG she is such a Heather.” Because I kinda am.

    But I know who I am.

    I stand on the shoulders of proud generations before me. People who have fought for my freedoms. People who enabled me to devour this life before me. I have grown up lippy, opinionated and loved. Perhaps the last variable is the most controversial…..I am vocal because I feel safe and because I feel loved.

    It’s easier to be lippy when you are loved.

    So I will.

    I struggled this 4th.

    Because I don’t understand what it means to be an American anymore. This is not a left or right thing…..this is a who are we thing? Are we really a gun toting, forced birth, climate change denying country?

    I recently read an article that said, “America is more about a dream than a place.”

    I read that to my husband who said, “what a cop-out- of course we are a place. We are a country with a GDP of $20.95 trillion. This is a place.”

    So, if we are not dream. And really a place…..I feel a tad more unsure of where I belong.

    Because in this last week we (the collective American We) forced a ten year old rape victim to travel to Indiana because no one in Ohio would perform an abortion.

    On a ten year old….who was raped.

    I should read the story above about a third world country. I should drink my double espresso with foamy oat milk in the shape of a heart and shake my head but not be surprised….because I’m an American….and this happens in other countries but not here.

    Oh wait.

    And I like Ohio….really Cleveland is lovely. Don’t make me reconsider my Skyline Chili in Cleveland!

    On the 4th, we drove to my mom’s to celebrate this great nation. And we heard about another shooting in Highland Park, Il.

    Highland Park….an incredibly affluent suburb. Home to Sixteen Candles, Ferris Bueller and Risky Business. Highland Park is my personal Columbine, before Uvalde, before Buffalo, before, before.

    Ferris, Cameron and Sloan Peterson wondering WTF.

    And I’m not an extreme progressive. I am not woke….ask my nieces and they will tell me that I clearly do not know my pronouns.

    I am not super liberal.

    But this is not my America.

    On the flip side…..I am……I am…….super lippy and super loved and soon to have a super knee.

    And I make mediocre parade signs. And one thing my generations before have taught me, is that this is still my America, even when it feels as scratchy as a wool sweater lined with sandpaper……

    As the great George Washington. once said, “Winning was easy, young man. Governing is harder.”

    May we Govern better, listen to the voices.

    And may this be our non-partisan pic one day…..filmed in Highland Park, IL.

  • My article around a local brewer was just published. I’m really not a beer drinker but this was fun to write. Clearer text is below the article.

    Lets meet for a beer!

    What is Kyle Brewing in Candelas?

    Colorado is known for its stunning natural beauty, sunny days, active families, and great craft beer.

    Kyle Larkin wants to make sure the residents of Northwest Arvada can embrace the magic and creativity behind great craft beer.

    Kyle is the head brewer at Resolute Brewing Company, located at 18148 w. 92nd Lane and we’re pretty happy he’s here. Originally from Pennsylvania, Kyle took a detour to DC before he found Colorado and decided to call it home.

    Kyle started homebrewing in college and found a passion for it. After a short stint in the business world after graduation, he decided to become a professional brewer and never looked back. Part artist, part chemist with a little touch of foodie, he finds his inspiration after years of experience, knowing great ingredients and cooking.

    “It’s fun to taste flavors in food or cocktails and then try and put that into a beer.”

    The love of food pairings is apparent when reading the beer menu; ingredients such orange, passion fruit, coconut and chocolate reveal the complexities to brewing. Beer is barrel aged, temperature and humidity controlled enabling Kyle and his team to create wild and delicious recipes.  

    Kyle started brewing at a small brewpub in Pennsylvania. This took him to Troegs Independent Brewing in Hershey, PA. Word travels fast in the brewing industry and soon he had an opportunity brew in Washington DC, working for DC Brau and starting their barrel aging program.

    “Living in the nation’s capital was great, but my fiancé’ and I wanted to experience somewhere new. After considering different job offers, I ended up accepting a position with Avery Brewing so we could be in Colorado. From Avery, I worked at 4 Noses Brewing before joining Resolute.”

    Resolute doesn’t only brew beer, its hopes are to create a gathering place for the Northwest Arvada community, “It is Resolute’s singular hope that we transform our community into a family, driven to create vibrant relationships around the brewery. We hope that lives are changed based on the friends made in the taproom, and that charity, hospitality, and kindness flow out of our taproom along with our beer.”  

    Kyle runs the production side at Resolute but he does so much more than produce beer. The 20 beer lines change depending on the season, new ideas and unique varieties. Master Smash is a recent creation, an IPA brewed with Genie pale malt from Root Shoot Malting in Loveland. This balanced bitter IPA features notes of pineapple, mango and touch of pine, because it is after all, Colorado. And just in time for Summer is the Mexican style Lager, Onda which pairs well with salt, citrus and Colorado Sunshine.

    There are a few traditional flavors that are a constant at Resolute. These favorites can be purchased as six packs and shared at your next bbq. Artwork on the cans reflect what is best about Colorado. The Standing Room only beer can depicts a concert at Red Rocks and might inspire a lengthy conversation with a buddy about the best Red Rocks concert (for the record? It was U2, Under a Blood Red Sky but I’m open to a debate).

    All the Fuss Lemondrop Sour takes you paddle boarding; the aspen are turning and there is snow on Longs Peak. Grill Sauce portrays a young couple in their backyard with the Flatirons in the distance. The artwork is so beautiful, you might not recycle your can. And even better, the beer inside the can is delicious.  

    Resolute focuses on community, craft and culture. “Our Founders come from various walks of life, including finance, engineering, and accounting, but we resonate as one around our passion for community, great beer, and even greater people. Resolute is more than a brewery; it is a community of people and families enthusiastic about being a part of something bigger than themselves. Resolute’s employees and culture imbue hospitality, social responsibility, and a love of the craft.”

    This community of people has made Resolute a hub of Northwest Arvada activity hosting yoga, live music, farmer’s markets and tasty food trucks. Trivia is hosted every Wednesday night. Resolute has partnered with the Candelas Running Club. The group meets every Thursday for a run and then relaxes by the fire pit with their favorite ale or lager. July will feature a Cars and Brews Auto Show. Check their events page for updates and a schedule of food trucks.  

    The vision of great beer, great community and giving back has been a recipe for success as Resolute continues to grow. “Our current mission is to continue to make Resolute a spot for people to gather and have a good time while delivering the best beer we can. In five years we hope to have a third location open, which would serve as our main production brewery. This would allow us to increase our production volume and get more beer to people around the state and grow our community.”

    When asked what advice Kyle would give to a new business owner, he says without hesitation, “Be passionate, follow your plan and listen to your employees.”

    And the success behind this business? “Quality above all else.”

    We are so excited that Kyle decided early in his career to pursue his passion, provide this community a tasty brew, a place to gather and enjoy.

    He and the team at Resolute raises a glass to thank the community and sponsors of Neighbors of Northwest Arvada. “Thank you for all of your support. We hope to share our beers and our space with you all for years.”

    And thank you Kyle for sharing your story and the creativity behind your craft. We will see you around the fire pit this summer!

  • *Dear Reader- this post is about a good day!

    But it is also contains sensitive content around birth and death…..proceed with caution.

    Today was a really fun day. Our hockey team won the Cup! You can’t win a cup and not have a parade. So today half a million of my closest Avs fans converged in downtown Denver for yes, a parade.

    I was fortunate enough to be ‘behind the scenes’, drive a firetruck (kidding) and hang out with my Avalanche besties who really are young enough to be my children but that’s okay.

    And they only know me as a crazy mom-aged stalker….but that’s okay too.

    Today was a good day.

    I do not take the joy I feel, my laughter and easy smile today for granted.

    17 years ago at this exact time, I questioned everything in my life. I questioned my body. I questioned the cruel circumstances of life and death, pregnancy, parenthood, marriage, motherhood, fatherhood. My whole world and everything I knew about it had been tilted on an axis.

    17 years ago the beautiful full term baby boy I carried in my belly died.

    Before I would have been hesitant to tell you this- perhaps frightened that it would be too much. But since ya’ll are talking about my baby-maker on every corner…..talking about what you might know without ever having gone through what a lot of women are going through…..

    I’ll lay my cards out……..

    A little bit of me died 17 years ago.

    But I was still alive.

    Have you ever seen the Walking Dead? I was Zombie angry. I howled at the moon. I despised healthy pregnant women who gave birth to beautiful babies. I was foreign to everyone else who didn’t loose their babies. I was unpredictable, postpartum bleeding, hormonal and amazingly sad.

    But today, June 30, 2022 was a good day.

    And I honor today’s good day

    I honor it in the fact that the long, extensive, heart breaking road was incredibly personal and difficult. But we made it.

    I challenged all of my friendships, and somehow they all survived. I challenged my marriage and we survived.

    Jack, in his own silent way, paved the road for other unfairness in our lives. I thank him for this and will always be grateful for the lessons this silent, beautiful boy gave us.

    Our story is not different because we wanted our boy. Every story about intimacy, relationships, life, birth and death is told behind closed doors. Government has no place here.

    I invite you into my story, without my invitation, you have no seat.

    I had more rights as a woman 17 years ago. Even at that time, I was asked by doctors what happened…..did I fall? What did I eat? They copied my file in fear of being sued. They were respectfully distant.

    I weep for what my Sisters must endure today- for the ugliness and beauty of birth. For where we are as a country and for where I hope we can meet across the table. For my sisters who must make horrible, private decisions. And for those who have to make much more difficult, public decisions.

    For the day that I died a bit…..but for new branches that grow.

    And for today….this day…..this fun day. I honor it all.

  • Last week I caught the Vid…the Rona….the big ol’ assy virus I have been trying to avoid for 2 1/2 years.

    I have to admit, I became a bit judgy in those 2.5 years.

    Friends would fall to the Vid and I would politely remind them that Vegas is a super spreader city, or that we shouldn’t be asking……thanks for masking!

    Me and my four shots made me as cocky as MC Hammer….

    Can’t Touch This.

    But ya did.

    And Vid crawled up in my nose like the creatures from Alien. Seriously, I snotted this little asshat the other day. Not on my watch booger alien. Not here

    Its a strange thing when that test strip strikes positive.

    Am I the only one of the ladies that feels like I’m taking the 15 minute pregnancy tests?

    Who did I breathe with? Crap, I exchanged air with so many.

    In my 51 year old dottage, I marched my positive test down to my husband and said, “What did you do to me????”

    Seeeee? Just like a pregnancy test.

    And he held up his own positive test and said what did you do to meeeeeeee

    Crap! In this new universe, men can carry snot aliens too!!!!

    And then I thought about my surgery…..my carefully planned surgery. The Rusty replacement, only a week out.

    I looked at Hubs, “should I call the surgery center?”

    Because I gotta tell you, I didn’t want to call the surgery center. I didn’t want to tell them I was carrying an alien booger baby in my nose. Maybe we can just forget the alien baby?

    And Hubs sat back, “Well…….it’s a big surgery. And its a pandemic, and it was a top cause of death for 2021….but you do you.”

    Fine. Fine. Fine.

    So I called my surgery center. And I did feel a bit dirty.

    Heeeeyyyyyy yeah, guess what? I have Covid. Wahhhhhhhaaaat? Its a thing? A rescheduling thing? No. Really? F&ck Fine

    I didn’t really say F&ck.

    But I wanted to. Turns out Covid can cause blood clots during surgery.

    Blood clots are bad.

    And then I thought about my life.

    And the times that schedules were switched for my girl.

    About how we planned, thought, rescheduled, planned again, cursed, and at the end it was okay. .

    It was okay- sometimes even better.

    Perspective is an amazing gift.

    And in four weeks (universe willing) I will be VID free with a brand new knee and none the less worse for the wear.

    But it took a while to get here!

  • I have taken on a super fun side gig! I am writing for Neighbors of Northwest Arvada. June brought Father’s Day and a chance to interview my Pops and fellow (new!) Arvada resident.

    Content isn’t available online but you can read the text of my interview below.

    Happy June!

    Happy Father’s Day Neighbors of Northwest Arvada! Did you know that Father’s Day did not become a nationally recognized holiday until 1972? We see you Dads out there; on the bike trails or tossing a ball around.

    Good Dads are the best. In honor of the holiday, I took some time to chat with my own Dad and fellow Arvada resident about Fatherhood.

    Hi Dad.

    Hello Daughter.

    You’ve been doing this dad thing for over 50 years, and we think your pretty good at it. As a dad of adult kids, watching your kids have kids, what advice would you give to someone whose brand new to this?  

    Enjoy the time- it goes by so quickly. Play with your kids, be the goofy dad. Jump in the pool and be the shark. Wear the tiara for the tea party. When your kids are young, the days can be long, but you blink, and they are off to college. Enjoy the time when they think you’re still pretty cool.

    I still think you’re pretty cool. What has been your proudest moment as a father?

    Seeing my children grow up to become decent, respectful, talented world contributing people makes my buttons pop.

    Well, that’s a pretty nice thing to say about your kiddos. Thanks! We are going to fire up the grill for Father’s Day, what’s the key to grilling a really great ribeye?

    Start with a good quality bone-in ribeye. Season only with salt and pepper and have a good grill that allows searing the meat and then finish at a lower temp. Insist on chewing on the bone, it is Father’s Day after all.

    Fine, you can gnaw on the bone, because it is your day. Speaking of your day, what is the appropriate gift? No gushy answers like world peace, go big.

    A tie.

    Really?

    No, this is a little gushy, but I really have reached a time in my life where being with my kids and grandkids is always at the top of my wish list. And as my kids have gotten older, they now give us really thoughtful gifts!

    That’s it, you’re getting a tie. Dads are known for bad jokes, what’s your best one?

    In honor of my grandsons and because we were just talking about grilling, here you go…..Why didn’t Han Solo like his steak? It was Chewie.

    That’s terrible. And kind of funny. So, you just moved to Arvada to be closer to family. What’s the best thing about living here?

    Well, aside from being closer to all of you, we love that we are so close to the mountains. We can be out hiking and biking in minutes. I have also found a couple pretty good brew pubs and I might just try out goat yoga.

    You’re crazy. But I’m glad you’re my dad.

    To all our Neighbors of Northwest Arvada dads, granddads and really amazing uncles, we hope you have a fantastic day with family, friends and of course those little munchkins that made you dads. Go play and enjoy the day!

  • I found myself at Orange Theory yesterday evening.

    My best workouts are somewhat anger enriched.

    And last night I needed to sweat out some demons out in my head.

    I pounced on the bike and started riding to the music. Orange Theory plays really great, sometimes a tad ragey music.

    Blue Monday by Orgy started to play…… it’s an angry song- not a super angry song but it fit my mood…..

    And I still find it so hard,

    To say what I need to say,

    But I’m quite sure that you’ll tell me, just how I should feel today.

    Orange Theory has these sayings on the wall, “Sweat Today, Smile Tomorrow.” “You’re only competing against yourself,” “If it does not challenge you, it does not change you.”

    And I’m thinking, where is the rage wall? Where is the “I’m working out my inner demons? It’s not sweat, it’s anger juice“, or my favorite saying to work out to when I feel a touch ragey…… “%uck this $hit

    Please note, the above is my internal cadence- I don’t run around Orange Theory saying %uck this $hit. But say next time you’re on a run and feeling a little angsty, try it, it really does work.

    The song continued to play…

    How should I feel?

    How do I feel?

    The song echoed what I have been feeling all day…..How should I feel.….my heart rate hit a high of 176….I was stinky and dripping anger juice. I think I got a little of this worked out.

    Once I dug past the anger, I recognized what was at the core; grief.

    I grieve. And perhaps because grief is a companion, I know when it’s here. This morning it sits next to me, sipping coffee and helping me write this all down. This morning it is silent and respectful.

    Hello Grief.

    I grieve for the families in Texas, for the immense, unfathomable loss. For how these parents now have to navigate life.

    I grieve for you and I. For a society and decisions we no longer understand- for government and laws we are willing to accept knowing that the consequences are deadly.

    The consequences are deadly.

    I grieve for a society that on the darkness nights cannot accept anything less than shame, denial and blame.

    I grieve that it all seems completely out of my control. I grieve that for many of us, it’s easier just to say silent.

    I have never been good at being silent.

    We need to acknowledge the broken- not the shame or the blame but the deeply, broken before it is absolutely unfixable. I don’t care who broke the window. Can we just say that the window is broken?

    Let’s start there.

    Cause I don’t know where else to start.

    In the meantime, I’m going to try and work this shit out in my own head. Apologies in advance to whoever is next to me at sweaty Orange Theory.

  • Ah…..Happy Mother’s Day dear tribe. If you have followed me through the years, you know that Mother’s Day is somewhat problematic for me.

    In fact I kinda hate it.

    But I am happy to report that (so far) this Mother’s Day has been with love, laughter and sans tears.

    For me.

    But I think my whole tribe of Mama’s might be somewhat distraught by the goings-on of this last week. Roe v. Wade is a tinder box of emotions and the implications of what could happen in the next month are far reaching and catastrophic for women.

    I do not say that lightly.

    I have buried two very wanted, very loved babies. I gave birth to a full term stillborn son. I understand that life is really, truly is a miracle; a lovely, messy complex miracle.

    After Samantha’s second Flight for Life trip to Children’s, I got an IUD. The thought of having another baby was absolutely terrifying to me.

    “But you would be a great mom,” friends and family said.

    Heeeeeellllll yeah! I would rock Motherhood. But if you carry an asshole genetic condition like we do, the chances of having another Little like Jack and Samantha is 25%.

    1 in 4.

    “Those are good odds in Vegas.”

    Seriously, someone said that to me. 1 and 4…..after losing two kids, you should go for another because 1 and 4 odds are good in Vegas. I asked said person if they would get on a plane that had a 1 and 4 chance of crashing.

    “Maybe not.”

    But it wasn’t just the odds of having another medically complex child. It was me. I was a mess. I was traumatized, I was sad, I was angry, and I knew, I knew, I was not in a good place to have another child, or adopt, or foster, or focus on anything else other than healing my traumatized brain.

    Trauma makes us do crazy things.

    A couple weeks ago, the world watched Will Smith smack Chris Rock. We analyzed, we cancel cultured, we talked, we saidWill has anger issues.”

    I made a note of this when I marched into my therapists office a couple weeks ago. “Was that Anger, or was that Violence? I get angry about things in my life but I don’t hit people.”

    My lovely therapist pulled out the Anger doll from the movie Inside Out:

    “Look at him!” I said, “Nothing about him says healthy Anger! Anger is a red, enflamed man in a tie. THIS is why we hit people, because a movie about all of our emotions says Anger is really bad, out of control, Anger is chaos.

    This clearly is not a healthy representation of Anger.

    For fun, she pulled out the Sadness Doll from the movie…..

    Hmmmmm……I see gender stereotypes here. Poor Sadness, a young woman in her wooly sweater, round glasses and bob haircut. It is easier to console Sadness than confront Anger.

    No wonder we fear getting ANGRY about what is going on. No wonder we choose to be quiet and frowny. A recent movie about our emotions says this is what we should be.

    I may have given my therapist a complex about the Inside Out Dolls.

    What is my point? Lordy, I am all over the place here. My point (and I do have one), is that it is easier to shame, to quick fix (you lost a baby, get another one), to try and solve, to vilify Anger and to succumb to Sadness.

    And Trauma? That crazy outlier, just ignore it until it jumps up on stage and smacks you, shame it and then call it Anger.

    We can be Angry my friends. We can tell our daughters, our nieces, our friends, our Granddaughters, that Anger is appropriate, healthy and necessary at this time.

    Anger is not a man in tie.

    Anger is Woman being told how she will live her life.

    Oh and yeah, Happy Mother’s Day. I love you tribe. I love you fiercely.

  • Hello Dear Readers! I now have a fun side gig as the Content Coordinator for a local magazine- here is the latest article around Motherhood. Happy Mother’s Day Lovely Tribe!

    Connections Beyond Motherhood: 

    Sunday, May 8th marks Mother’s Day, a time when we celebrate the person that has been with us from the very beginning. Flowers, chocolates, brunches, and homemade cards are just some of the ways to honor Mom.  Did you know the first proposal to make Mother’s Day an official national holiday was rejected? In 1908, Congress joked that if there was a national Mother’s Day, we would soon have to celebrate a national Mother’s-in-Law Day, hence the motion never passed. In 1914 however, Woodrow Wilson declared the second Sunday in May as Mother’s Day, a national holiday to honor all mother’s. 

    Ironically, the woman who started the campaign to make Mother’s Day an official holiday was arrested in 1923 for disturbing the peace at a candy convention. Nine years after its official inception, she felt Mother’s Day had become entirely too commercialized; focused more on profit than sentiment. 

    Two thoughts run through my head at the statement above. I would find it extraordinarily difficult to disturb the peace at a candy convention. I would yell and shout and someone would hand me a piece of chocolate and then I would find it very hard to be angry. 

    The second is that this lovely holiday established to honor the first person who held us tight and made sure our tushies were dry is sometimes a little difficult. 

    For medical reasons, my husband and I do not have children. We grappled for years around how to ignore this holiday for ourselves but still honor our own mom’s who we happen to be quite fond of. 

    I have also watched my Mom’s friends manage crowded restaurants with cranky, hungry children during Mother’s Day. “I would like to go away for Mother’s Day,” said a friend, “I would like my husband to take the children and I will spa with my girlfriends. It will be quiet, civilized and lovely, complete with food that I get to eat while it is still warm. Is that wrong?” 

    I told her it was not wrong as long as I was one of those girlfriends. 

    I have many friends who are Moms. I watch in awe as they raise beautiful, independent, amazing children. I also have friends who sadly have lost Moms. Recently on a girls’ trip, a friend and I passed a See’s Candy stand in the airport. “My mom loved See’s Candy,” she said with a sigh and teary eyes. 

    We left 5 minutes later with a box of chocolates. As Mother’s Day approaches, I am reminded to send my friend a box of See’s , not only to remember her mom but that as we get older, good friends step in where our Mom’s might not be with us. 

    Dictionary.com defines motherhood as ‘the state of being a mother,’ they also define it as, ‘having an inherent worthiness, justness or goodness that is obvious or inarguable.’ 

    When I told this second definition to my friend and mother of three, she laughed, “Today none of my children find me Just or Good. The only thing that is obvious is how unhappy they are with me.”

    Raising the next generation of amazing humans takes a village. My best mentors were adults beyond my parents: coaches, teachers, aunts, uncles and family friends. My friends now are those who talk openly about the challenges to raising kiddos and lean on their tribe. I love it when they lean on me and honestly, it’s a great excuse to see Sing 2 or ride the water slides one more time at Water World. Some of my best days are those when I can be the amazing aunt. 

    To the Mom’s, Auntie’s, Grandma’s and friends who show up, Happy Mother’s Day. I have had the amazing opportunity to interview many families through Neighbors of Northwest Arvada and the resonating theme has been a sense of family and a community you can lean into. It takes a village; to you and your village.

  • My nephew is trying out for swim team. Today we practiced our strokes in the pool- I’m not sure who is more excited…..I think I could love being a Swim Aunt.

    As we walked towards the locker room, I looked at the signs, Men, Women, Family Dressing Area. “Are you okay to shower and change in the Men’s locker room?”

    He rolled his eyes at me, “Hehe, I’m almost ten.”

    Sigh….yes, yes you are almost ten.

    I did shower and change super-fast so I was out before he was, and I may have stood too close by the Men’s Locker Room door while I waited for him. Hello Crazy Aunt.  

    And while ten is shocking and I’m not quite sure how these years past so quickly, I’m okay with ten. I can look at this young person and think, “I can deal with ten. I’m not okay with you going into the locker room alone. But okay, ten.

    It’s May and my social media is peppered with beautiful young adults. Adults I knew as babies. Adults who are now going to prom, graduating, getting scholarships, making the world a better place. Your children have grown and I’m not quite sure how that happened.

    These photos are so bittersweet.

    This clearly was not the path chosen for us. I don’t look at these amazing moments and think that could have been our Littles. But since so many of us were having babies at the same time I do marvel at how 16, 17, 18 years have past before me and how you have created, watered, fed and grown a beautiful (almost) independent person in this time.

    Grief is a thief of time. Not just the time that could have been but in the time after. It takes time to just survive, time to rethink, recalibrate a new normal, time to watch that new normal crumble and rebuild again. It takes time to do the work and, in that time, you, my friend, have built a person.

    When my grief was young, it needed constant attention. Like a young child, it demanded to be fed, held and coddled. I am happy to report I can now leave my Grief at home for a weekend and it will not destroy the house.

    It’s a new time for many of us. I am thrilled to see your amazing kiddos go off into the world. I am grateful that as time has passed, I feel more present in this joy.

    This weekend, I watched an interaction with my friend and her 16-year-old daughter: beautiful, sassy, testing the air with her new wings. As she ran off, I turned to my friend and said, “your child is my spirit animal.”

    And Nephew, I will watch you and your brothers grow. I might even wait ten feet from the Men’s Locker room door.

    Maybe.

  • Sittin’ in the morning sun

    Yeah, I’ll be sittin’ till the evenin’ comes

    Watching the ships roll in

    And then I’ll watch them roll away again

    I’m just sittin’ on the dock of the bay

    Wastin’ time

  • I can count on one hand the times when I have truly have not understood the plan that God has designed for myself or my Loves. That is not to say there are other times when I have been sad, angry or distraught.  But shattered and unable to make sense, that has been few.

    This week has been shattering. And anytime something breaks into a million pieces, we are left behind holding the shards, wondering how the hell to piece something back together. We hurt. And knowing that the people we love are experiencing a hurt a 1,000 times ours, there are no words.

    There is no fix. And at times it feels there is not enough strength, grace or patience.

    But there has been love. Lots of love. An outpouring waterfall of Love.

    I did not know Jackson well. But I love his Mama fiercely. And I love that in this shattered time, she has shared Jackson with the world- amazing, caring, beautiful, talented, humble Jackson.

    I have thought of him often. And I have thought of how I would like to carry this lovely soul in my space- my world needs a little bit of Jackson……..

    • When I kiss my Mama: which I intend to do more of
    • When I golf with my dad
    • Heck, even when I golf
    • When I wear blue
    • When someone calls me Ma’am- Jackson made Ma’am a compliment
    • Anytime I pass a Texas Roadhouse
    • When the Aggies play ball (I might even become a fan)
    • Dimples- any dimples, any time
    • When I do anything of service
    • Wrestle with my nephews
    • Dr. Pepper
    • Anytime Russell Wilson makes a touchdown!
    • If I ever give birth to an 11-pound baby (I know this one is a stretch but if it happens, I will think of Jackson)
    • Anytime I am with his Mama.

    This list is woefully short, but I know that is temporary. I look forward to adding more Jacksonisms in my life.

    I will start with a Dr. Pepper.

  • My sweet tribe is suffering an unimaginable loss.

    A loss of such magnitude that stories are shared on the news: graphic images coupled with newscasters speaking in high rapid tones to convey the urgency of this magnitude.

    With every story shared about this loss, we shake our heads, shed another tear, mumble another f-bomb and wonder how the hell this could happen.

    Because this is an unimaginable loss.

    I know loss. I have grappled with the injustice in the universe, cursed at God and wondered why me? But this one leaves me a bit speechless and wondering how my sweet tribe will recover.

    This one leaves me angry.

    More stories are shared. Stories around a driver, stories around a father, stories around a criminal past. And it is so easy to be angry.

    I’m a big fan of anger. While others are talking that someone is in a better place, I take the ‘this is f$cking sh!t balls’ approach.

    Have I mentioned I’m trying not to curse so much?

    Have I also mentioned I’m not doing a very good job at trying not to curse so much?

    Where does anger sit in this process?

    In my potty-mouth opinion, anger is a pillar to moving through grief.

    It must be addressed and it must be felt. The other day I was looking for my Ouiser to slap because my goodness, I really wanted to slap something

    *On a side note, if you have not seen Steel Magnolias, go see it now.

    My tribe has handled the unimaginable with amazing grace and love.

    But I want them to know that when things get angry, we can offer up a Ouiser, hold their hand, sit in the uncomfortable, and perhaps teach them a new curse word.

    We are here when things get angry.

  • I am making cookies tonight for my friend’s dad.

    I mix the butter, sugar, flour with a spoon.

    In frustration, toss the spoon in the sink and dive in with my fingers. I feel the dough in my hands. Knead, turn, mix, knead, turn, mix

    It calms my restless head, my restless heart and my restless hands.

    It is messy. I am messy.

    My friend sent me a text this morning. An unbelievable, gut-wrenching text. My friend lost her son in a tragic accident.

    And therefore my friends dad lost his Grandson. And since my friends dad likes my cookies, I am making cookies.

    Because I don’t know what else to do. And it calms my restless head, my restless heart and my restless hands.

    It is messy. I am messy.

    We never know what to do when we grieve.

    Because grief is scary.

    Grief is the scariest, most unknown, pitbull of emotions. And while we can surprise our Besties on their 30th birthday with fireball shots and chicken wings, when it comes to Grief, facing our most intimate, primal of emotions, we assume that our Besties want to be alone.

    It’s kind of like walking up to that big haunted house with all of your friends and having them say, “I think you got this, right? We’re going to get a pizza.”

    We never got this. My dear friend does not got this, nor does her cookie-loving Papa.

    As I write this, after making 230 dozen cookies, I can say that today was heartbreaking, devastating, raw, and ridiculously sad.

    I got a text from my friend at 6:15 this morning.

    And I howled at the moon for the news.

    At 6:17 I got a text from another friend.

    6:18 another.

    And we made a plan.

    A plan that no one walks this journey alone no matter how scary that fucking house is or the pitbull of emotions.

    I hope we can keep this promise to our friend- that we hold her hand and help her through whatever may pop out.

    At the very least, we have cookies.

    We love you my friend.

  • I get attached to my body parts- as flawed and imperfect as they may be, they are mine and mine alone.

    The bone on bone knee to your left? You can call him Rusty.

    If you spend any time with me, especially doing anything active like……walking? You notice Rusty, you see Rusty’s troubled past.

    I’m a tad hobbled, a little limpy…..lets face it, I walk like penguin. Rusty has aged to about 80. But I am not 80.

    Rusty has supported me through years of bump skiing, marathons, hiking, biking and poor decisions. I do love Rusty and our contentious, swollen relationship.

    But I can no longer rely on this beautiful knee of mine. A couple weeks ago on a backcountry ski, I had to turn around before I summitted the Banana Bowl. Who turns around before the Banana Bowl?????

    Last week in the beautiful powdery trees of Steamboat, Rusty complained, protested and finally decided he had enough. Who leaves the beautiful powdery trees of Steamboat?

    Today I sat with my surgeon, wondering what else we could do for Rusty. He words were, “Heather, anything we do for your knee, other than replacing it, is like using duct tape on the Titanic.”

    Fine. Fine witty surgeon.

    And so I rallied the troops. Called the Hubs and made a plan. Rusty and I will spend the summer together. It will be Rusty’s last hurrah. We will swim and bike, take short limpy walks together. And as the leaves fall from the trees, we will say goodbye.

    Rusty will be replaced with something new and shiny- something not of flesh and bone but titanium and plastic. It will serve its purpose but it will never be Rusty- nothing could ever be Rusty. But I am now at the point where that might be okay.

    Sometimes making a decision is a delight. A terrifying perhaps painful delight but a delight none the less.

  • My Mama and my Uncle are transcribing my Great Grandma Burbank’s journals.

    Today they sent 1941 and I am intrigued.

    Grandma Burbank is my Granny’s Mama- my Granny who just passed this summer.

    We grew up with stories about how very, very poor the Burbank side of the family was; squirrel was a good meal, snapping turtle made a good soup, you always did your business outside and electricity was quite bourgeois.

    Today I opened the latest pages. I love the first lines from my eloquent Great Grandma B….

    Drop a word of cheer and kindness- just a flash and it’s gone but there’s half a hundred ripples circling on and on.

    Here are 14 days with Great Grandma B as she tried to feed and clothe seven children. Days were busy and full and no rabbit was safe. Here are some little notes- My Gran is Emma Mae. Bob is my Great Aunt Mary Bob and the rest…..well we’re figuring it out as we go.

    January 1, 1941, Wed

    Drop a word of cheer and kindness-just a flash, and it is gone-but there’s half a hundred ripples circling on and on and on.  Harry, Ruby, Gene, Roy and I butchered for Mrs. Burbank.  Rained most of day.  She gave us quite bit of meat and some lard.  Stopped at Mary’s on way home.  Ruby and Harry ate supper at Uncle Henry’s.  Owen Montgomery called hunting Jane for a date.  Ha! Ha!  He got her at Uncle Henry’s.  Joe Fritchie called wanting Bob to work and Walter came after her.  Jim and Bob spent night with us.

    January 2, 1941, Thurs

    Mended some.  Gene cooked head meat.  Harry’s left about 9:30 a.m. for California. Jane didn’t go.  We sure hated to see them go so far.  Gene and Roy went with Don to Newton. Nola and Lilly called to tell Harrys goodbye. Rained in morn but sun shone beautifully in afternoon. Thelma and Irene Crouch brought my lard cans home. Ollie went to L’ville with Ralph.

    January 3, 1941, Fri

    Washed. Jane, Roy, Ollie and Mavis went to Buck’s 18th birthday party. Bob came home with them from Fritchie’s after party. Turned so cold at night, spit snow and wind blew part of clothes off line.

    January 4, 1941, Sat

    Boys and Buck went out at night and Buck spent night. Was cold. Violet called and Jane went home with her. Gene and boys cut wood in morn. Gene and Ollie cut awhile in afternoon. Roy caught an opossum. Girls found living room flue platform on fire when they went to bed. Gene and them put it out. Mended most of day and ironed. Gene and boys rung the old sow as they couldn’t keep her in. Boys killed 2 rabbits.

    January 5, 1941, Sun

    Violet, Esther, and Buck were here for dinner. Went to Sunday School and Christian Endeavor at East Pinkstaff Church.  Walter, Jean and Margarite Fritchie called in evening and went to Christian Endeavor.  Gene spent evening at John’s. Ralph T. went to Hammond. Children walked home with Violet. Dovey Ann had fever at night. Bob went back to Fritchie’s after Christian Endeavor.  Was 10 degrees above zero in morn.

    January 6, 1941, Mon

    Gene went to L’ville in afternoon with Tiny. Ordered Bob’s and Mavis’ shoes from C.M.O.  Ollie expected to go along, but Mrs. Diver didn’t come. Mended. Harry and Emma May started back to school after holidays.  Roy spent morn at John’s. He and John fixed flue where it had been a fire. Mavis, Harry and Emma May spent evening at Nina’s.

    January 7, 1941, Tues

    We washed. Roy cut wood at clearing. Gene helped Millard Miller cut wood. Ollie went to L’ville with Tiny. Uncle Vinis’ spent evening here. Roy killed 2 rabbits and 1 squirrel. Gene got pictures taken while surveying from Harold Cramer. Jake Elders’ baby died at 3 a.m. with pneumonia. Nina and girls called.

    January 8, 1941, Wed

    Mavis and I ironed. Aunt Pearl ate dinner here.  Rev. Roller and Lilly called.  Roy and Ollie cut wood and Gene helped out and buzz wood at a wood cutting for Carter Crouch at Uncle Henry’s woods.  Bob and Mavis got their shoes, but Mavis’ were too small.  Lige Wesley called.  Dovey Ann had fever at night.  Roy had a bad sore throat.  Sent Katherine and Pearl Bowen a letter.  Heard that Minnie Tiffany had pneumonia.

    January 9, 1941, Thurs

    Leonard Ferriell came after Mavis for Mrs. Tiffany.  Gene, Roy and Ollie cut wood in morn and Gene and Roy in afternoon, Ollie helped Uncle Vinis haul in fodder in afternoon.  Uncle Vinis called.  Ma got a card from Ruby at Amarillo, TX.  Was cloudy + spit snow.  Jake Elder’s baby was buried.  Fritchie’s bro’t Bob home at night.  Gene and Roy killed 1 rabbit.  John began plowing on Harry with tractor.

    January 10, 1941, Fri

    Sewed on aprons.  Mrs. Tiffany bro’t Mavis home after dinner.  Harry and Emma May were home excused from exams.  Bob and Emma May spent afternoon at Joe Fritchie’s.  Ralph called in morn saying they were going to move to Octaves’ house next week.  Jo Pinkstaff called in evening wanting to rent Ma’s house.  Ollie waited until 2 p.m. for Mrs. Diver but she didn’t come.  Gene and boys hauled 8 loads of wood with Uncle Henry’s team.

    January 11, 1941, Sat

    Mended all day.  Bob washed her clothes and she and Mavis ironed.  Gene and boys worked in clearing in morn and they and Uncle Vinis got a big mess of fish at Charlie’s in afternoon.  Violet and Jr. called also Adrian Claycomb wanting to rent Ma’s house.  Ma spent afternoon at Aunt Pearl’s.  Bob was sick with flu. Roy and Ollie went to Flat Rock with Uncle Vinis’ at night.  Car killed guinea and Bob cleaned it before she found out it was Lilly’s.  Took it to her.

    January 12, 1941, Sun

    Was a lovely warm day.  Roy ate dinner with Buck.  Norma and Arlene called in evening.  Hanford Wesley called in afternoon + he, Gene, Ollie, Herbert and Harry went to clearing.  Geo. Millers’ called. Went to Sunday School and Christian Endeavor and preaching at East Pinkstaff.  Bro. Albert gave some very good thoughts on a Christian putting stones in another’s way.  Sharon Borden came for Bob, but she was unable to go to work for them.  Nola brought up popcorn which they popped.  Lee Mitchell called.

  • I’ve always enjoyed being a tad unique, marching to the beat of a different drum, channeling my inner Heather.

    Today is Rare Disease Day- a globally-coordinated movement focused on rare diseases and the 300 million people impacted globally by these conditions. As much as I’ve liked being my unique person, I wish I didn’t know as much as I know about this day. I wish my genetic makeup, my genomic sequence wasn’t quite so rare.

    I wish I didn’t know that 35% of deaths within the first year of life are attributed to a rare disease. I wish I didn’t know the inequality within healthcare, access to care, therapies and social opportunities for those impacted by rare disease.

    But I do.

    And you can’t change what your life is. We, as a family have become closer by what makes us rare. Our POLG-1 deviation has made us vulnerable, perhaps a tad sweeter to each other, super protective, a village and a tribe.

    Would we be different if we were not rare? I don’t know. We can imagine what life would be like without mitochondrial disease but it’s not reality. Reality is our Rare.

    And along Rare, you meet the most amazing people. People who fight for your cause just because they love you. People who work tirelessly for a cure. People who wake up everyday with extraordinary hurdles- either those impacted or the caregivers who love them.

    Would I trade a Rare Life? Heck yeah. I would love two lippy, stinky teenagers. I would love to have my brother school me on the moguls. Rare is not glamorous. Rare is hard and heartbreaking.

    And yet Rare is beautiful and bonding. Rare is raw strength.

    Above it all, Rare is who we are. You never stop being Rare. The best we can do is own it, be it, and help other recognize Rare in the world. Happy Rare Disease Day.

  • Yesterday was 2-22-2022.

    And if you were in second grade, you were in grade 2 on 2-22-2022.

    One of my nephews got to celebrate being in grade 2 yesterday. His school did some special activities unique to the day and his grade. One was ‘what will your life be like at 22 years old?’

    This was his response-

    Hubs, Pops and I took the Phews skiing the day before and I guess the day stuck. I love everything about where Phew 2 will be at 22. I love that he loves to ski. I love that he will have short hair, big feet and long legs.

    Hubs and I formed a life around this crazy Winter sport. We both spent our 20’s bumming around ski resorts, sleeping on couches and watching too many Warren Miller flicks. Even before we met, the foundation of us was embedded in this skiing lifestyle.

    And Phew’s Dad? My brother is an amazing skier.

    I hope this sticks. I hope the Phews fall in love with these ski days…..not just because it’s a great activity but because selfishly, my most magical days have been spent on a mountain; a great powder day, a terrific summit, the sun dancing between flecks of snow, a day on the mountain with family and friends.

    This sport took me around the world. It made me independent. It gave me confidence. It made me strong- it took my breath away.

    And a good powder day still makes me giddy and giggly, nom, nom, nom.

    Everyone needs something in life that makes them feel this way.

    So you go my long legged, big footed, short haired nephew. Teaching you to love this sport is a delight.

  • I’ve been thinking about these delights quite a lot lately.

    What qualifies as a delight? There are quick shots of delight- they dance on
    your tongue like dark chocolate.

    And then there are delights that brew in your head. They are not immediate-
    it is not instant. Perhaps a process that sooner or later becomes a delight-
    a little more lasting, a little more precious- laced with complexity and life.

    My latest delight is around a conversation, albeit born out of intense pain,
    it is a quiet, coveted delight. I can delight in this honesty and our ability
    as a family to touch something that at times seemed untouchable.

    Last week I sat with my dad and my Hubs. We stopped in for lunch after
    skiing. Conversations evolved from small talk to tough talk.

    My dad has a dear friend that just lost a grandson in a horrible accident.
    Our collective heart aches for them.

    “How is Mr. B?” I asked

    “Well, you know. Not good? Okay? Sad? Hanging in there? It’s heartbreaking
    knowing the hard days ahead for him and his family. I want to tell him just to
    hang on. It can be really awful for a while and I just don’t know how to say
    it.”

    “I always think of the Sara McLaughlin song…..hold on, hold on to
    yourself, cause this
    is gonna hurt like hell…”

    I grabbed a napkin and held it to my eyes, “it still makes me cry.”

    I blew my nose and we all took a long drink of our Mary Jane ale.

    And watched the Olympics.

    Because you know, when you don’t know what to say……sports…and beer.

    And then I broke the silence.

    Because ugh……silence.

    “But you should tell him something Dad. Seriously. You should tell him that
    he is going to be okay. That his family is going to be okay. That sometimes it
    feels like you never, ever will. But you need to tell him that you trust, you
    know that Mr. B is going to be okay! You telling him that you know he can
    survive this…….that trust…… when it seems like the whole world is doubting…..that
    trust is everything.”

    “I know….I know.”

    “Trust is good,” Hubs interjected, “A stiff upper lip can be good too.”

    I grabbed Hubs’ hand and squeezed it, “And sometimes you have to tell
    yourself that we all grieve in different times, in different spaces and in
    different ways. And the only thing you can do is honor everyone’s process,” I
    bit Hubs’ finger in thought and angst. “Please tell him you know. You know, he
    will be okay.”

    We watched the Super G. People missed gates, missed times, racers fell and
    for some, the race and the dream they had been planning for a lifetime was
    shattered.

    It was nothing compared to the shatter we just discussed.

    But somehow, we all get up. Maybe we get up because someone on the side
    yells and cheers through the noise and tells us they know we can.

    Maybe it’s just our shear will and moxie.

    But we do it. We get up. And it hurts like hell.

    And years later we sit around a pitcher of Mary Jane Ale and chicken nachos.
    We dab teary eyes with rough napkins, knowing that we survived.

    Is it delightful?

    No, it’s not.

    But it is peppered with delight, gratitude, moxie and survival.

    I’ll take that spicy blend any day.

    And to Mr. B and family. We see you you. We grieve your enormous loss. Trust
    in this shitty process. We have nachos and beer when you are ready.

     

  • I talk often about how much I love you all. The GIFT I absolutely feel in having amazing people in my life. It is a gift. YOU are a delight.

    We are older. The fragility of life and our time on this earth has become more relevant. A month after this photo was taken, one of our loves lost their Mama. The importance of these relationships- knowing that we love and are loved, it is a sacred gift.

    Today’s Delight is brought to you by my amazing friend JoBeth: aka Jingo, Chippy, Jo-El, and all around amazing person. She is a talented writer, lover of life and someone I have loved and laughed with for 30 years.

    I just celebrated her 50th. Today I got this note in the mail about our time together. I think it speaks to so many of us about our cherished relationships- and it is a delight.

    Thank you note from Jingo:

    My Dear, Dear Friends:

    It’s hard to believe it has now been months since you all descended into the Valley of the Sun like rock stars at the start of a tour. There is a part of me that is ashamed and embarrassed at taking so long to write a thank you note, but there is another part of me that has been in denial that we are all back to the realities of our pandemic, adulting lives. Denial looks like this: It took me a week to break down the fancy dinner table that you guys made look like a 5 star restaurant. It took me two weeks to admit that the flowers in the mason jars were finally droopy and brown enough to let go. It took three weeks to take the Coronas out of the Yeti cooler on the patio (because we forgot about them). It took until Thanksgiving to find the last olive from someone’s bloody mary still intact in the deep end of the pool. And much to Eric’s chagrin, the cards you placed strategically for me to find and open are exactly where you left them- in my cupboard, in my cookbook, the the freezer with the beer glasses, and probably some other places I still haven’t discovered.

    A friend’s dad used to say that life is like a roll of toilet paper- and while I’m sure there are a shit ton of reasons one could insert here as to why this is, his particular thought was that because the closer you get to the end, the faster is goes. I certainly don’t feel like 50 is the end, but I do feel, with the exception of house projects, that everything seems to be moving quicker than I feel prepared for. While four days with you probably felt like an eternity to my liver, the rest of me felt those days were more life the first seasons of Ted Lasso, over way too soon. I kinda wanna go back and replay them until our next episode begins. Alas, the spin cycle of adulting waits for no fermented air-fiddle player.

    As I have finally conceded to reality and decided to scrape the freezer burn off that last card, to see all your names (and your collective nicknames for me), and to feel all the joy you brought to Arizona, I have been focused on how much that time filled me and how lucky I am, not just for the kick-ass celebration but the friendships that made it so. For a person who has hugged her way through life and who finds the greatest highs in belly laughing and just being in close proximity to my people, the prolonged social austerity of a pandemic may have made me physically plump, but spiritually, I was living on fumes. While the long weekend may have picked my innards, it also nourished and oxygenated them and the world around me.

    My goddess/god/ genderless sky monkey, what a GIFT it has been to experience you love, support, HUMOR and HUMOR, and your countless gifts for literally and figuratively the better part of my life. And what a gift is was that you all trained, planed and automobiled to the desert to be in-person reminders of how fanfuckingtastic my 50 years on this earth have been. I can’t and don’t want to imagine where or who I would be without all of you. That our incredibly unique and wholly special connection continues and grows even now give me such a feeling of pride and strength. I truly love each and all of you more than I can say. I love your spirits, your talents, your insights and intelligence, again- your HUMOR, your hearts, your voices, your stories, your families, our stories and our family.

    Until next time, my mountains-

  • I am trying to move more.

    Time of Covid, working from home shuffling 20 steps from my bedroom to my study, to sit for hours….

    and hours….

    Is not healthy. And I know I’m better, I’m clearer, I’m happier when I move. I KNOW that.

    Recently the American Heart Association came out with a study around how MUCH time we are sitting in time of COVID….and how bad it is for our heart. Our heart, like any muscle loves some movement. The old saying, ‘let’s get our blood moving?’ Our heart loves that saying.

    And you know what? I love my heart.

    In the new era of Heather Needs to Move More, I signed up for the Orange Theory Transformation Challenge! 8 weeks! 6 weeks of at least three Orange Theory workouts or more. I’m on TEAM. I have a COACH. It’s everything Moving More Heather needs to get motivated.

    This challenge started on Monday and then it snowed like 8 feet in Colorado and became arctic cold. Its the first week of the OTF challenge and I am falling behind already.

    Today was my day to get out and redeem myself. But it snowed on the 20. Maybe not really 8 feet but a good 12-15 inches and no one comes to plow the road to our house. This evening I put on my workout gear and started the car only to realize that I’m not going anywhere. Maybe into a ditch….but not anywhere else.

    And so I stomped inside only to complain that we live in the boonies and I need to go to Orange Theory because if I don’t, not only will I loose the OTF challenge but my heart will be very sad.

    Hubs suggested a walk. I may have flipped him the bird as I put my puffy coat and snowboots on and headed out the door.

    I was gone for an hour. I listened to classical music and a couple short podcasts. I returned rosy cheeked and somewhat numb.

    And okay yes, fine….I was delighted.

  • Mitochondrial disease is a horrible diagnosis- it is progressive, heartbreaking and all around just awful.

    But in the midst of the awfulness, some amazing people come into your life.

    One of these amazing Humans is my friend Calvin. I have known Cal for 15 years. Tomorrow this amazing human turns 17.

    If you know Calvin, you know his piercing blue eyes. You know how he holds your hand tight and gazes right at you. You know his brilliant smile and the way he engages with you. You never want to leave his side.

    Please help me celebrate Cal’s birthday tomorrow- send him a note or post a note here, I’ll make sure he receives it.

    Cal is a delight.

    Cal, so many wishes for the very best day and the very best year. To your health and that amazing smile. Keep fighting the good fight my friend.

  • This really isn’t Junior and I.

    But maybe it’s our alter egos. Junior out on the prairie, we’re riding along having just rescued a calf separated from his mother……The sun setting between his cute little horsey ears.

    Today I volunteered my Therapeutic Riding Center as a horse lead. Junior is my very patient horse. We’ve worked together a couple times and I feel like maybe (?) we’re bonding. No matter. I find Junior a delight.

    Tonight it was cold. I kept checking the website thinking class might be cancelled. I sighed as I donned my long underwear….it would be nice to just stay inside.

    No Heather! Get out of your fleecy pajama bottoms that no one on Zoom ever sees. Put your jeans on and the Carhartt jacket you had to have for ‘the barn’. And get yourself out in elements.

    Covid has made me soft.

    So, I wrangled myself up, drove in the snow and with much help, saddled up Junior for our class.

    As a horse lead, my job is simple…. lead the horse. But Junior’s student today was a spunky four-year-old whose pink cowboy boots barely fit in the stirrups. Her giggle was infectious.

    I felt incredibly responsible for them both.

    And then the lights went out.

    No seriously. The ice caused a driver to spin out of control into a power line. There was a flicker and a pop. The arena went dark. There we were in the evening light; Junior, our pink booted student and me.

    The dusky, snowy, reflection from outside provided enough light to play a couple games before it just got too dark. We walked Junior outside and untacked as the final light disappeared. My pink booted student carried off a saddle twice her size.

    Snow continued to fall as we blanketed Junior and tucked him in with a bucket of oats.

    “Good night Junior. You’re a good boy. Stay warm.”

    Tonight, I am back in my fleecy pjs- warm and toasty. I’ve washed my hands several times, but I still smell just a tad……..horsey.

    Delightful.

  • This is Young Heather with my Hottie Mama, my Gran and my Great Grandma Burbank (aka Grandma B).

    Four generations of women who have lead amazingly different lives. I am so proud of these strong women before me who helped pave a path for my own journey. In preserving that sacred journey, I pass Day 22 of Delights onto my Hottie Mama- aka, Mama Judi:

    Grandma B’s Journal’s

    I spent a very delightful week this month with my brother Rod and ‘Sister’ Jeanine, in Rosharon, Tx.  Rod is transcribing my Grandma B.’s. daily journals.  I went down for a week to help him convert pages of cursive into Word documents.  There are years’ worth of work reflected in the above suitcase.  It is truly a labor of love.  Each month takes 2-4 hours to transcribe.  It was closer to 2 hours with both of us working (Rod reading and me typing.).

    Grandma B kept a journal every day of her life until 2 days before she passed in 1983.  We finally have her journals from 1938 to 1983 (except for a few years that burned when their house burned down.)

    These are such an incredible, delightful treasure for our family.  Many days show the struggle of farm life in the 1930’s and 1940’s.   No going to the grocery store for most things.  Growing, canning, preserving, hunting or fishing for most of their food.  No electricity, central heating or indoor plumbing. Neighbors and family helping each other and visiting with each other on a regular basis.

    For many years, she used a 1-year journal to record 5 years of her life (thus saving paper).  The writing is so tiny that my brother uses an electronic enlarger to read it.  Even then, some days are very difficult to read.

    In many instances, she wrote in pencil and the pencil has faded so much that it is almost unreadable but so far Rod has been able to figure it out.

    As he finishes each year, he is sharing the Word document with family members so we can all experience the world through my Grandma’s eyes.  She was a pretty amazing person and we learn so much about her life by reading her journals. It is truly a delightful experience and an honor to my Grandma.

    Thanks Rod!!!  We love you!!

  • I’ve been thinking about these delights quite a lot lately.

    What qualifies as a delight? There are quick shots of delight- they dance on your tongue like dark chocolate.

    And then there are delights that brew in your head. They are not immediate- it is not instant. Perhaps a process that sooner or later it becomes a delight- a little more lasting a little more precious- laced with complexity and life.

    My latest delight is around a conversation, albeit born out of intense pain, it is a quiet, coveted delight. I can delight in this honesty and our ability as a family to touch something that at times seemed untouchable.

    Last week I sat with my dad and my Hubs. We stopped in for lunch after skiing. Conversations evolved from small talk to tough talk.

    My dad has a dear friend that just lost a grandson in a horrible accident. Our collective heart aches for them.

    “How is Mr. B?” I asked

    “Well, you know. Not good? Okay? Sad? Hanging in there? It’s heartbreaking knowing the hard days ahead for him and his family. I want to tell him just to hang on. It can be really awful for a while and I just don’t know how to say it.”

    “I always think of the Sara McLaughan song…..hold on, hold on to yourself, cause this is gonna hurt like hell…”

    I grabbed a napkin and held it to my eyes, “it still makes me cry.”

    I blew my nose and we all took a long drink of our Mary Jane ale. And watched the Olympics. Because you know, when you don’t know what to say……sports…and beer.

    And then I broke the silence.

    Because ugh……silence.

    “But you should tell him something Dad. Seriously. You should tell him that he is going to be okay. That his family is going to be okay. That sometimes is feels like you never, ever will. But you need to tell him that you trust, you know that Mr. B is going to be okay. You telling him that you know he can survive this, that trust when it seems like the whole world is doubting…..that trust is everything.”

    “I know….I know.”

    “Trust is good, Hubs interjected, “A stiff upper lip can be good too.”

    I grabbed Hubs’ hand and squeezed it, “And sometimes you have to tell yourself that we all grieve in different times, in different spaces and in different ways. And the only thing you can do is honor everyone’s process,” I bit Hubs’ finger in thought and angst. “Please tell him you know. You know, he will be okay.”

    We watched the Super G. People missed gates, missed times, racers fell and for some, the race, the dream they had been planning for a lifetime was shattered.

    It was nothing compared to the shatter we just discussed.

    But somehow, we all get up. Maybe we get up because someone on the side tells us they know we can. Maybe it’s just our shear will and moxie. But we do it. And it hurts like hell.

    And years later we sit around a pitcher of Mary Jane Ale and chicken nachos, dab teary eyes with rough napkins, knowing that we survived. Is it delightful? No, it’s not. But it is peppered with delight, gratitude, moxie and survival. I’ll take that spicy blend any day.

    And to Mr. B and family. We see you you. We grieve your enormous loss. Trust in this shitty process. We have nachos and beer when you are ready.

Samsmom: Life, Joy, Loss and Loving your Mitochondria

Life, Grief, Hope, Joy, Writing it Out and Loving your Mitochondria:

Samsmom: Life, Joy, Loss and Loving your Mitochondria

Life, Grief, Hope, Joy, Writing it Out and Loving your Mitochondria: