Month: April 2019
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Does trauma gives you a hall pass? Someone should tell the hall monitor
I posted something cryptic on Facebook Saturday. It caught a lot of attention from my tribe but it really wasn’t a big deal…. Nothing like seizures, mitochondrial strokes or premature death. I joke because I can. Because I have survived these things. I watched the EEG of my daughter explode. I have held hands in…
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YOPP!
“We’ve GOT to make noises in greater amounts! So open your mouth lads! For every voice counts!” Ah, thank you Dr. Seuss. Rare diseases are tough. And made even more challenging when one constantly has to explain the severity of mitochondrial disease. Energy…..tired….. But so tired that its hard to move your jaw up and…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 