Month: September 2019
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It Cannot End Today
This week found me in San Diego….which was awesome and beautiful and lovely. But more importantly, I was there for the Global Genes Rare Patient Advocacy Summit. Turns out, rare is not so rare. 1,000 beautiful souls gathered to make our rare known. Rare people are lovely. I already suspected this but there is nothing…
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Be Mighty- Our Patients are Waiting
This quote is not mine but I love it. I am going to steal it for every single mitochondrial presentation. For our doctors, for our researchers, for our government, for you….please…..be mighty….be bold……we are waiting. Friday found me here: Discussing this: I invite you to read the caveat on the bottom of the poster ‘Given…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 