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Welcome to Samsmom. I'm Heather and this is my journey as we navigate love, loss, rare disease, hope and resilency. Our family carries a POLG-1 genetic mutation that took my two children, Jack and Samantha and most recently, my brother Ryan. It's not an easy place to be, but here we are- with humor, love and grace, here we are.

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Month: April 2022

Featured

Sittin’ on the Dock of the Bay

On April 14, 2022April 14, 2022 By HschichieIn blogLeave a comment

Sittin’ in the morning sun

Yeah, I’ll be sittin’ till the evenin’ comes

Watching the ships roll in

And then I’ll watch them roll away again

I’m just sittin’ on the dock of the bay

Wastin’ time

Hi- I'm Heather. Welcome to my blog. Almost 20 years of archived life watching my loves impacted by mitochondrial disease. We have a POLG-1 mutation that manifests as mitochondrial myopathy. I have lost my two littles and a brother to this terrible disease but here we are; standing, battered, resilient, and searching for joy everyday. Thanks for being on the journey with us.

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    • Welcome to Samsmom. I'm Heather and this is my journey as we navigate love, loss, rare disease, hope and resilency. Our family carries a POLG-1 genetic mutation that took my two children, Jack and Samantha and most recently, my brother Ryan. It's not an easy place to be, but here we are- with humor, love and grace, here we are.
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    • Welcome to Samsmom. I'm Heather and this is my journey as we navigate love, loss, rare disease, hope and resilency. Our family carries a POLG-1 genetic mutation that took my two children, Jack and Samantha and most recently, my brother Ryan. It's not an easy place to be, but here we are- with humor, love and grace, here we are.
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