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To Courage:

This weekend we finished our 17th year riding in the Courage Classic. For those just tuning in to our journey, the Courage Classic is a two-day bike ride benefiting Children’s Hospital Colorado. We started riding when Samantha was 3 years old, and Children’s Hospital Colorado became our second home. The doctors there never stopped fighting for her. They later cared for Ryan, and today they continue to care for families living with mitochondrial disease. Every mile we ride is our way of saying thank you. The team grew into a consistent top-ten fundraiser and to date, we have donated over $1.5MM to the mitochondrial clinic through this ride.

The ride is not for the faint of heart! The first day is 80 miles through the Colorado Rockies and climbing three passes. It’s a beautiful, emotional ride that I did not train for this year…..at all.

In fact, I decided to sign up three weeks ago. On Friday, I dusted off my bike, removed the Courage Classic tags from last year, and headed up to Copper Mountain for the ride. I had no expectations and made the comment that we were kind of ‘limping’ through this year’s ride.

If I’m honest, our whole family has been limping through this year.

I was greeted in Copper by dear friends who surprised me for the weekend. As I was navigating through the parking garage, there they were, in full force, in full support, in full surprise. Me? Shocked and Grateful…..good friends are the best.

Saturday was a charged day. It was Samantha’s birthday; the climb was up Vail Pass. Did I mention that I hadn’t trained? Suddenly my lack of expectations turned into anxiety over whether I could still ride a bike.

And I started off. I listened to the U2, Joshua Tree playlist as I climbed, one of Ryan’s favorites. Despite the fires in the area, the morning was clear, the mountains enveloping, and the wildflowers were beautiful, and I was reminded once again how lucky I am for this time on this earth.

I thought of Ryan and his love of this area, Copper, Vail, Vail Pass, the Gore Mountain Range. I thought of Samantha and who she would have been at 20 years old. And I thought of Cynde, fighting her fight. I reminded my legs to stop complaining. My lungs to settle down and just breathe. There are harder climbs in life than Vail Pass.  

I kept riding, down Vail Pass, into Vail and onto Minturn. Mom and Jim met me back in Vail for a much needed, much appreciated SAG wagon back to Copper.

Later that afternoon, Dad, Cynde and Hubs joined us in Copper. We sat together in the sunshine talking about exactly the kinds of things families never imagine they’ll discuss over a post-ride beer: cancer, the death of a son, Samantha’s birthday, what she might have been like at 20, and Jim’s knee replacement.

I looked at these amazing people I call family, who joined me for the Courage Classic, and the resounding word I came up with for this group is appropriately…….

Courage.

For all that we have done.

It takes courage to shave your head.

It takes courage to bury a child.

It takes courage to get up the next day and face the world.

And to face the world with a sense of positivity, clean underwear, and teeth that are brushed.

It takes courage to be present. To laugh. To be vulnerable. To embrace others. To ask for help.

My friends joined us and remarked that this was a group that had divorced, forgave, embraced each other, and were now sitting around laughing and drinking Aperol Spritzes.

I remarked that the Aperol Spritz is the most welcoming of summertime cocktails and, of course, everyone should be friendly when an Aperol Spritz is in your hand.

But really it is more than that.

That at the end of the day, it was about Jack, it was about Samantha, it was about Ryan, and somewhere among all of this tragedy, it is about hope and Cynde and this terrible diagnosis.

And that is what we do. And it does take courage. And yes, this weekend was better, so much better than I ever thought it could be. We even got a great shout out from the Children’s Hospital Foundation:

Thank you, dear tribe.

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Break Out

Happy Sunday, dear tribe!

I apologize for the late update. I escaped to Grand Junction this weekend with my sister-in-law and my Phews. Colorado has been hot and smoky, so we escaped to dear friends with a pool, a movie room, and what may be the world’s most powerful air conditioner.

Little did I know that while I was breaking out for the weekend, Cynde and Pops were planning their own jailbreak.

The weekend got off to a rather exciting start.

On Thursday morning I got a voicemail:

“Call us! We’ve had an exciting morning!”

I reminded them that details are important. Given the “excitement” we’ve had over the past month, I now end every conversation with, “May this appointment be really boring and uneventful.”

Excitement is a tad loaded for me. 😊

Thursday’s plan was simple. Cynde was scheduled to have a chemo port placed. It’s a fairly routine procedure that takes about an hour and makes future chemotherapy treatments much easier.

Except…

The night before, her TPN pump decided to go on strike. It stopped delivering the nutrition and hydration her body depends on. Since her nutrition is infused over an 18-hour period, missing eight hours is a pretty big deal. It throws everything off, including blood pressure and lab work.

Sure enough, when they arrived, Cynde’s blood pressure was too low to safely do the procedure.

Now what?

Chemo was scheduled for Friday, and without a port everyone assumed that plan was about to change.

While the doctors and nurses discussed their options, Pops asked a simple question.

“If she already has a central line, why can’t the chemo go through that?”

The room got quiet.

Great question, Pops.

After a few minutes of discussion, the team agreed. There really wasn’t a reason to place another line right now.

Victory!

One less procedure. One less opportunity for infection. And chemo could stay on schedule.

Cynde and Pops headed happily toward the parking lot.

They were halfway there when both of their phones started buzzing.

“Come back.”

“Your blood pressure is too low.”

“Please report to the emergency department.”

Fiddlesticks.

They dutifully headed to the ER and began the process of getting checked in.

Except…they really didn’t need another hospital admission.

What Cynde needed was a little nutrition, a working TPN pump, and some time for her body to catch up.

So they made an executive decision.

They broke out of the emergency room and went for an ice cream cone.

To be fair, “breaking out” was really more like:

“We don’t think we need to be here. We’re going to get an ice cream cone.”

Rebels.

The good news is that Friday’s chemo went much better than the first round, and for that we are incredibly grateful.

The chemo cocktail includes dexamethasone, a steroid that helps reduce nausea while providing a little extra energy and appetite. She may feel pretty good for a couple of days before the fatigue catches up.

But that’s tomorrow. Don’t borrow trouble from tomorrow.

Celebrate today.

If today is a day for an ice cream cone, eat the ice cream cone.

Tomorrow will take care of itself.

Today, we’re simply grateful.

Rebels.

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Gettin’ Wiggy With It

There is a quote that floats around the internet that says something like, “Losing my hair didn’t make me feel beautiful. It made me feel like a cancer patient.” I imagine that’s true for many people. Hair loss isn’t just about hair. It’s another reminder that cancer has arrived, and it announces itself to the world before you’re ready.

So here we go…..

This is a busy week for Cynde and Pops. On Thursday she’ll have her chemo port placed, and on Friday she’ll head back for another round of chemotherapy. Nurses continue to come and go, monitoring blood sugar, TPN, and her central line, but everything is moving in the right direction, the direction that gives her body the best chance to be as healthy and as strong as possible for treatment.

Tomorrow, Cynde meets with her hair stylist to talk about what comes next.

She’s always said she doesn’t want a wig.

But I also think we have an opportunity to have a little fun with this, because, Lordy…we could all use a little fun.

So we decided to imagine a few possibilities.

The Basics

What if we just embraced it? No wig. No pretending. Just Cynde- beautiful, striking, and strong. Add a colorful scarf, a cute hat, some fabulous earrings, and let her smile do the rest.

Then We Got a Little Creative…

#1 Soft Pixie #2 Sleek Bob

#3 Textured Pixie #4 Soft Layered Bob

And Then…Well…Things Got a Little Crazy.

The best part?

When you’re getting a little “wiggy with it,” you can be whoever you want to be. Cher one day. Meg Ryan the next. Maybe even Dolly Parton if the mood strikes. Whatever makes you laugh. Whatever makes you feel fabulous. Whatever helps you forget, even for a moment, why you’re wearing it in the first place.

This week is another big step in this journey. We’d love your healing thoughts, prayers, good vibes, and positive energy as Cynde heads into another round of chemo.

And if you have a favorite look from our little fashion show…feel free to vote.

Thanks, dear Tribe. ❤️

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Happy Independence Day, Dear Tribe!

We wish you a safe, joyful, and festive Fourth of July.

The word independence is a funny one, isn’t it?

Its meaning changes as we grow and as life changes around us. Over the last fourteen years, I’ve watched my Phews become more independent—venturing farther from home, trying new things, and seeing the world through their own eyes. Their independence is exciting, and every day they stretch its boundaries just a little farther.

This past week, independence looked very different.

It looked like coming home.

It looked like sleeping in your own bed, hearing the sounds of your own house instead of the constant buzz of monitors, nurses, and doctors coming and going. It looked like reclaiming a little piece of normal after weeks of uncertainty.

Sometimes independence isn’t about doing more. Sometimes it’s about simply being where your heart wants to be.

Cynde is finally home, carrying a blue backpack that delivers eighteen hours of nutrition each day through her central line. Funny how backpacks are with us through so many seasons of life and through independence. Backpacks take us to school, on adventures around the world, and, in this case, they brought her home.

Of course, no blue backpack of such importance could remain unnamed for long. The Phews and their cousins immediately got to work. Current favorites include:

• Violet Beauregard
• Smurfette
• Bluey McBlueface
• R2-Blue
• Marvin
• Mr. Drippy
• Percy the Pump

The debate continues, so if you’ve got a great name, we’d love to hear it!

Meanwhile, Jim, also known as Papa and my stepdad, celebrated a little independence of his own this week with a brand-new knee. Sometimes we have to take one step back so we can take many more steps forward; this time without pain.

Our bodies are incredible. And so is the medical science that helps us keep living the lives we want to live for as long as we can.

So today we’re celebrating many kinds of independence: a new knee, a blue backpack, the comfort of home, and the hope that tomorrow brings just a little more freedom than yesterday.

Happy Independence Day, everyone. ❤️🤍💙