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How Far We Have Come

Happy Saturday, dear Tribe!

Cynde had her first round of chemo post-surgery yesterday and, so far, so good. Everything is moving in the right direction.

Sometimes it feels like things are moving slowly in the right direction, but the right direction is good. Very, very good. And we will keep holding onto that.

Science is pretty cool.

The advancements being made in cancer therapies continue to astound us and fill us with gratitude. Chemotherapy is pretty harsh stuff. It is designed to kill cancer cells, but that also means the whole body can feel the effects.

When we think of chemotherapy, we tend to think of days of intense nausea, not being able to keep food down, and the whole body becoming weaker as it battles not only cancer but the side effects of treatment.

But as the science of killing cancer has advanced, so has the science of taking care of the whole body while doing it.

Cynde is on some pretty powerful anti-nausea drugs designed not only to calm the Tum but also to help stimulate her appetite and help her sleep — all pretty important things when your whole body is fighting some terrible cancer.

Chemo can also cause peripheral neuropathy — damage to sensory, motor, and autonomic nerves.

We watched Ryan suffer from increasing neuropathy, and it affected his ability to walk, eat, hold things, and balance. It’s difficult to rely on your feet to move you through the world when you can’t feel them.

Fortunately, cooling gloves and socks are now being used during certain chemotherapy treatments to try to reduce the risk and severity of neuropathy. And apparently, they also feel kind of nice on your hands and feet.

Cynde went with Suzzipads.

We kind of like the name, too. 🙂

Cynde and the Suzzipads at the infusion center.

And then yesterday, after chemo, a nurse came in and put a patch on Cynde’s arm.

This patch is basically a tiny infusion robot. It hangs out on her arm for about 27 hours after chemo and then gives her a little needle prick and delivers medication that helps boost her white blood cell production, making it easier for her body to fight infection during the time after chemo when those counts can drop.

Once the medication has been delivered, its job is done.

It’s like a little med fairy that hangs out on your arm, gives you a boost, and then goes on its way.

Cynde and her med fairy.

As we move into this chapter of recovery and next steps, it’s easy to get impatient. To want to feel better right now. To yearn for life to return to something resembling “normal.”

I say that without pretending to know what Cynde is really going through or what it feels like to be in her body right now.

But personally, I really look forward to the day when cancer doesn’t take up quite so much space.

When Pops and Nonnie can talk about their next vacation instead of infusion therapies.

When appointments aren’t the things around which everything else gets scheduled.

When life gets to be boring again.

Until then, we will keep moving in the right direction — even when it feels slow.

And we will be grateful for science, med fairies…

and Suzzipads. 🙂

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Pacers

My Pops and I used to run marathons together.

It’s odd to be living a moment and, at the same time, hope that you remember that moment forever.

I remember standing at the start of the Chicago Marathon with 30,000 other runners. The skyline loomed over us as we made sure we had everything we needed for the next 26.2 miles.

As the Star-Spangled Banner started playing, I started to cry.

“Why are you crying?” Pops asked.

“Because I’m so happy to be here, and I never want to forget this moment.”

By mile 20, I was singing a different tune.

I was tired. Cranky. Dehydrated. And I really, really wanted to be done.

Whenever our family does something hard, we say the same thing:

This is a marathon, not a sprint.

I said this to Pops on Friday, talking about this journey we’re on.

He thought about it and said, “This is more like the Leadville 100.”

Fair point.

If you don’t know the Leadville 100, it’s a 100-mile running race through the Colorado Rockies. The entire course sits above 9,200 feet, climbing to Hope Pass at more than 12,500 feet. Runners have 30 hours to finish.

It is a monster.

At this time, I should point out that Pops and I have never run the Leadville 100. Nor do we have any intention of doing so.

But when we think about really, really hard things—the kind that require massive endurance, grit and moxie—we think about Leadville.

The race starts at 4:00 in the morning, and the first stretch is considered “deceptively easy.”

Although if any 12-mile run beginning at 4:00 a.m. can be considered easy, well, I guess this would be it.

I think about those first couple of “good days” after surgery that way.

Every step is a good step.
Every bit of healing is good healing.

But there is still a lot of race left.

There are climbs ahead. There are times when you have to dig deep. And there are times when you simply can’t dig any deeper.

Right now, both Pops and Cynde are battling colds. A cold is enough to make anyone feel crappy. Add in the pillaging of the Tum, and you feel crappier. And let’s not forget the small matter of battling cancer.

They are in the middle of all of it.

And sometimes, it is just really hard.

At mile 50 of the Leadville 100, runners can have a pacer—someone who runs alongside them, offers encouragement and helps carry the load.

Pacing is a delicate balance.

You have to know when to encourage someone, when to help, and when to back off and let them run their own race.

I think maybe that’s where all of us are right now.

We’re the pacers.

Although, I have to tell you, I would be a terrible pacer.

Not only are my knees bad, but I get terribly anxious and immediately feel the need to fix and manage everything.

How are your feet?
Do you need a cookie?
Can I carry your pack?
No, really. Let me carry your pack.
You’d like me to stop talking?
Okay.
Can I sing?

So perhaps my lesson in all of this is learning how to be a respectful pacer.

To run alongside the people I love without trying to run the race for them.

Chemo starts again on Friday, and we will learn a little more about the success of the surgery and what the miles ahead look like.

Until then, please keep Pops and Cynde in your thoughts.

Offer encouragement.

Offer a cookie.

Offer to carry the pack.

But if they insist on carrying it themselves, that’s okay too.

Sometimes the most important thing a pacer can do is simply stay beside you.

There are still miles ahead.

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The Power of Friendship

It seems slightly indulgent to be writing this while looking out over the Aegean Sea, but I think travel is a pretty good metaphor for life.

We are better when we stop to watch the sunset. When we gasp at something we have never seen before. When we wander down a road without knowing exactly where it leads.

And, most importantly, when we look our travel companions in the eyes and say, “I am so very grateful you are on this journey with me. That I get to share this special time with you.”

We feel that right now.

We felt it in the incredible outpouring of love when Ryan died.

We feel it in the ongoing support, food, gifts, visits, texts, and notes you have delivered to Pops and Cynde.

We are so very grateful you are on this journey with us.

Cynde is doing well and is celebrating almost a week at home! She is recovering, healing, and settling into a new state of normal. She was even able to attend one of the grandboys’ football games and has enjoyed a couple of visitors.

The biggest issue right now is fatigue—which is no surprise considering the pillaging of her tum.

So please continue to reach out. Send the words of love and encouragement. And please don’t take it personally if you don’t hear back right away. Every note is read. Every message is cherished. Sometimes she just doesn’t have the energy to respond.

Meanwhile, we have been traveling with dear friends who, along the way, have introduced us to new dear friends. We feel incredibly fortunate to be sharing this amazing Grecian adventure with them.

This morning, we were talking about friendship, and one of my new travel buddies shared a passage with me:

“I think friendship is one of the greatest love stories we’ll ever have. Someone who has nothing to owe you chooses you anyway. They become a part of your life just because they want to be. I don’t think we talk enough about how special that is. To be loved by people who are not family. Who didn’t fall in love with you. Who just met you, got to know you, and decided, ‘I want you to be a part of my life.”

“I think that is one of the purest forms of love there is.”

Maybe that is what I am feeling so deeply here, halfway around the world.

Life gives us so many journeys we never planned to take. Some are breathtakingly beautiful. Some bring us to our knees. Most contain a little bit of both.

But what a gift it is to look beside you and realize you are not traveling alone.

To healing.

And to those who help us heal.

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HOME

“Perhaps home is not a place but simply an irrevocable condition.”
— James Baldwin

My head is full of words and thoughts, but I wanted to get this update out as quickly as I could.

In the midst of all the action, Hubs and I jaunted halfway around the world to Greece. So, perhaps it’s fitting that I find myself thinking—and writing—about home while being so far away from mine.

Cynde is HOME!

In the words of Pops, Cynde was #1 in #2 yesterday!

Your thoughts, well wishes and prayers got some things moving, and we are so incredibly grateful.

She was discharged yesterday evening and arrived home to good neighbors, dear friends, tokens of love and, perhaps most importantly, her own bed next to Pops.

Nothing is more healing than home.

I have more thoughts about that. About this journey. About this life.

Until then……

HOME!

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Bippity Boppity Poo

Everyone needs a fairy godmother 🙂 Here’s one wish for the week

Happy Monday, Dear Tribe!

This weekend was not easy.

But given the pillaging of Cynde’s tummy and all the healing going on inside her body, it was probably unrealistic to think the weekend wouldn’t be tough. She hasn’t always felt her best, and we’ve had to remind ourselves more than once:

This process is a marathon, not a sprint.

But…

Speaking of butts — sorry, I couldn’t resist…

We need ONE thing to happen before Cynde can go home.

And it’s not a number one.

Sorry. I’ll stop.

Actually, no I won’t.

Nothing says, “Hey! My digestive tract is awake and working again!” quite like…well…things moving along.

So here we are.

After chemo, major surgery, a warm chemo bath, belly pillaging, walking the halls and everything else Cynde has endured over the past few months, our entire family has been reduced to anxiously awaiting a poop…..because that means she gets to go home.

And we are not even remotely embarrassed about it.

So today, Dear Tribe, we have one very specific request.

Send all your good juju toward Cynde’s intestines.

Here’s to healing.

Here’s to getting home.

And here’s to poop.

Bippity. Boppity. POO. 💩