Oofta! This site has been neglected! My writing brain has been consumed with my side gig, writing for TWO local publications. It’s fun to see your name in print. And super fun when you get to write about the people you love.

Nod to a Phew here. And nod to a sport that has earned my respect- here is one of my latest articles:

It’s football season.

Those three words make some of us giddy; the excitement of a game at Empower Field, cheering the Buffs, or following our favorite High School player, many of us wait all year for this time.

In early August, you can find coaches Tim Sexton, Joel Diebel, Seth Guenther, Matt Reinick, Chris Gregoire, and Chris Slape on a field in West Arvada, surrounded by about 30 enthusiastic middle school boys ready to play football. They are the Arvada Youth Wildcats and they have been waiting since they made the playoffs last November to play again.

Finally, finally summer is almost over and it’s football season.

Coach Sexton watches as the boys do push-ups and burpees to warm up. “We’re all dads with kids on the team. Some kids have been playing together since they started flag football when they were six. Now here we are, it’s been fun to see the team evolve.”

Tim grew up in Arvada, played football for Arvada and went onto play for UNC. He’s known some of the other coaches since high school and played against them on rival teams. There is usual banter; Arvada vs. Arvada West, who really was the better player, and who now is better looking. But when it comes to coaching and instilling a sense of pride for their team, the Wildcats are all on the same page.

“Coaching a team, coaching kids, coaching colleagues, it’s a similar philosophy. Hard work pays off, know your goals, focus and work towards those goals,” says Coach Sexton.

Life skills are taught on this field. Collaboration and communication are essential. All players need to know not only their role but where each team member is supposed to be during a play. “Egos are checked at the door. When we’re here, we are all part of a team with one goal.”

Good coaches are fundamental to this process and the Wildcat coaches know how to balance each other out. “We have very different personalities. Some of us are tougher on the kids than others and that works well for certain players and at times we all have to be tough. We want to equip these kids with the tools to get through those tough times on the field and in life.”

Warm up is over and practice starts. Offensive teams go with the offensive coach and Defense heads off to their part of the field. Each coach knows each player and provides feedback; where they need to be, what’s not quite working and what they are doing right. Players listen intently, learning the consequences of their actions, both positive and negative.

“We want all of our players to be successful. If they don’t know what to do, we need to look at ourselves as coaches.”

90 minutes is over, and the team gathers together to talk about what went right and where things need to improve. Coach Sexton, Diebel, Guenther, Reinick, Gregoire and,  Slape call out players that had a good catch, a good tackle, a great assist. And everyone cheers for that person.

At the end of practice, these 13-year boys walk off the field carrying their helmets, they fist bump and high-five each other. They are tired and smell like 13-year old boys.

And they can’t wait for the next practice.

And that is why we love football.

2023 was fun. I didn’t know it would be fun but the culmination of 365 days turned out to be pretty amazing.

There are many quotes about it being never too late to invent, or reinvent yourself. This last year, I really tried to be serious about my writing. Not just writing about me, and my grief and my story and my………….

But writing about you. And your story. And what makes you get up in the morning.

Turns out, I might just be okay at this. When I look at 2023 and hundreds of pages of content, my most proud moment was when Catholic Charities of Baltimore trusted me with their year-end appeal. Here is my letter on behalf of Catholic Charities.

This organization is amazing- they serve so many in need. I was very proud to tell their story.

Onto 2024! Need a Freelancer? Happy to be your person 🙂

I love my side writing gig. It is a thrill to put community stories to print, especially when you get to write about Paralympian Zach Miller.

Keep being awesome Zach!

Hi All! I had the honor of writing about one of my favorite nonprofits MaxMods, in a local publication. Here are the great things they are doing to bring the Holidays to everyone 🙂 You can donate at http://www.santaslittlehackers.com

As I have been called upon to deliver the Phews to multiple events, my character has come into question.

Apparently, I drive too fast.

I’ll take this. I’ll hand it back with the fact that everyone else drives too slow. Not you. You, dear reader are a great driver.

But yes, everyone else drives way too slow.

And then there is the question around my language.

I guess I say the F-word.

A lot

There was a vote among the family……Who says the F-word most often?

And I won, or lost. Apparently among all of the adults in the family, I say the f-word most often.

“What the F$ck?” I said to the Phews.

No really, I didn’t say that…..but I really wanted to.

Instead I said, “Well goodness gracious, that’s a shocker. Whatever could have come to that decision my little muffins?”

Okay, I didn’t say that either…..but somewhere between the two came the truth…..

“Really? I say it more than anyone else?”

“Yes.” Said all the Phews.

“No kidding?”

“No kidding.”

And I had two thoughts. One thought was that I needed to curb my vocabulary among the Phews.

Second thought? Fuck it. When I think of how I want to be remembered…..the creative use of the F-word may not be a terrible way to be memorialized.

And yes, everyone else drives way too slow.

My family huddles well.

Sadly, I believe it’s because of years of practice, but we do this well. We lean in, call in reinforcements (thank you!) and try, as best we can, to help each other out. It is here that I am always reminded of what family is- it is here that I find who we are and the glue that bonds us together is solidified.

In the last month, I’ve spent some time with the oldest Phew. We are right at the cusp of boy-hood and teenager-hood and man-child and all of the things that clingy Aunties are not good at. Oldest Phew (OP) is growing up.

My job as of late is to take OP to football practice. We have bonded over music that gets you ready for football practice. Eminem, Kanye, Drake……angry music that I love but triggers my Auntie radar….just a bit.

We pull into the practice parking lot; OP jumps out with his football gear. I gather myself, turn off Eminem, get my thermos of tea, extra coat, foldable chair and try my best to be cool.

You only get one shot, do not miss your chance to blow. This opportunity comes once in a lifetime, yo.

Yesterday OP and I went to the Bronco game. Denver lost but we had a great time. OP studied the starting line, recited stats, called plays, high five’d. We each got pizza and a giant lemonade.

I sang karaoke to Vanilla Ice….because I still try my best to be cool. Collaborate and listen, Ice is back with my brand new invention

Walking back through the post Bronco game crowd is nutty…..lots of hyped-up people who may have been over-served in the last 6 hours. We got to our parking lot and there was that guy. That angry drunk guy…… that guy who picks fights with people who just want to get home in time for 60 minutes. That guy was yelling at another car, pounding on the windshield…..I steered OP in the other direction.

We jumped in our car….”hang tight Bubs, lots of people making some bad decisions here.”

And we lined up to get out of the parking lot.

Angry Guy jumps in his Subaru, backs up 6 inches towards my car and tries to cut me off.

I honk.

Angry Guy starts an animated non-verbal conversation aimed at his rear-view mirror.

Angry Guy is drunk.

I take a picture of Angry Guys license plate. Fortunately, Angry Guy has been such a douche, I have many witnesses in my favor. But Angry Guy is hating me- OP and I watch barrage of hand gestures.

Perhaps Angry Guy realizes if he continues, he is going to draw more attention to himself from authorities.

This would not bode well for angry guy.

So he pulls to the side and lets me pass. I forget my window is rolled down.

“YOU’RE WELCOME!!!!” Angry Guy yells.

I don’t acknowledge but try to navigate the line. Angry Guy cannot contain himself. He gives his middle finger a kiss, points it at me and yells out, WHORE!!!

Whore? Well, let’s take it back it up…….I’m a 52 year old, white haired woman, driving an SUV with a child in the back. I could represent a lot of insults but this one? Okay.

I yell back, “Seriously. Knock it off. My kid is in the car.” Ironically, this shuts Angry Guy up.

OP and I continue to navigate traffic. I explain that I engaged a bit too much with Angry Guy. I should have ignored him.

“Are you okay that I called you my kid?”

“Well yeah….you’re my Aunt…”

“Thanks buddy. It takes a village.”

Would I have been uglier had OP not been in the car? Probably. I can go Ape Poop with the best of them. But every time I wanted to toss an F-bomb I was reminded that someone was watching- this kid who I adore and someone who I always want to be my best self with.

The best way to be cool was to be cool.

Thanks Kid.

Mitochondrial Awareness Week is coming to a close and I am late in posting. This is not to say this week, and this disease has not been on my mind. Like many times before, this stupid disease sits in the corner of my life, farting and belching, creating a stink, and reminding…….

I have often said this disease could suck my big toe.

Which is ironic….

The big toe thing.

Mito symptoms present in so many different ways, seizure, muscle weakness, tummy issues, heart issues…. you never know which cells and body systems will be impacted.

One issue for my Bro is nerve cells- he has quite a lot of neuropathies in his hands and feet.

Think about your hands and feet. I am thinking about mine right now as my fingers tap my keyboard, my foot kicks absent-mindedly at the edge of my desk. The nerves in my hands and feet remind me when I kick too hard or do something awkward.

‘Ouch, that hurts.’

Our nerve endings protect us from ourselves.

We learn at an early age that the stove is hot, ice is cold, we have to pick up our feet or we will stub our toe. But when you no longer feel anything at the tip of your toe or on your little pinky finger, you don’t realize when you damage those tiny, fragile appendages.

Bro can’t really feel below his knees. That’s a lot of body to maneuver without feeling. Feet get heavy and hard to lift, or they lift too fast, and toes get stubbed, again, and again.

Or, a toe gets broken, but that toe can’t feel anything, so that toe can’t tell you it’s broken.

Bro’s Toe broke a couple months ago. But because the communication between Bro and his Toe is also broken, Bro’s Toe couldn’t yell loud enough to be heard.

And like many unheard toe’s, Bro’s Toe got infected.

Infections are terrible, intrusive beings. And like any unheard infection, the one in Bros Toe moved, squirmed, bartered and manipulated its way into the bone.

Big Toe Bones don’t like to be infected.

Bones don’t like to be infected. And as much as we would like to think that our bones are hard and calcified, bones are quite vascular and dependent on blood flow.

And because infections like nothing more than to spread to other area like further bone and vascular highways……. the infected part of Bros Big Toe needs to go.

Adios y vaya con dios.

This Little Piggy went to…..

And I joke. Because this is what you do when this sucky ass disease that can suck my big toe infects Bros Big Toe.

You tell Toe jokes.

In all seriousness and support, Bros Toe goes on Tuesday and Bro will be non-weightbearing for a while.

All toe jokes, toe memorials and words of support can be posted here or on social. Bro would love to hear how much you will miss Bros Big Toe.

Please PM me if you would like to help in other capacities. I will be setting up ways to help soon.

Love this tribe.

And this disease can still suck my big toe.

Something happens to the older sibling.

We don’t ask for it. We don’t really anticipate it. But somewhere in our early life, someone plopped a squirmy, warm little cherub in our lap and said that this was our little sib and it was our job to make sure they made their way in life.

Which is natural.

Not.

Because really, we’re like 2, 3 maybe 4? And this little person is set in our little laps.

And we don’t know enough to question.

But everything set before us had a reaction to an action, we push it and it squeaks, we hit it and it lights up, we bite it and it tastes good.

And our parents set their next precious little in our lap.

Push? Hit? Bite?

“No, love your little brother, give him a kiss.”

Love? We really haven’t figured out the potty but no matter.

And the Grandparents flash the kodak camera and go smoke a ciggy.

Because it was 70’s and anything goes.

My Little Bro was plopped in my lap at 1974. To give the elders grace, they did make sure your diaper was clean, that you were fed, and your head smelled good.

They also knew I was a pro at going wee in the potty and not on the baby.

Well played 70’s parents.

Well played.

Your head smelled amazeballs….better than it ever had in future scenarios. And I was hooked.

You became my little brother.

I became your big sis.

And that was it. Forever in my life, once you were plopped in my lap. I am your keeper.

A keeper in the late 70’s, early 80’s meant that there was cereal in the pantry. That the milk had not turned, that someone had the key to the front door.

That we had a quarter to call a friend…..or play PacMan, your choice.

And we did it. Us two. Our young parents got divorced. It was a bit ugly. The dog died.

But we still had cereal. The key still worked. And somewhere along the way, we found our way.

You found football. You found it at a young age and I watched this kid who wore plaid pants and a striped shirt turn into a confident kid. A cool kid. An Athlete. You bloomed.

You showed up at my University.

At 16 you announced yourself at a fraternity party as Ryan from University of Washington.

People asked if I had met the guy from UW. Seriously?

He’s my brother. He’s a sophomore at Highlands Ranch High School. And no Kelly, you cannot hook up with him

Didn’t matter Little Bro. You are unstoppable.

Homecoming King, NOLS graduate, Winter Park Jr. Ski Patrol, Gonzaga Crew, best freaking friend, the most amazing dad, loyal brother.

A friend of mine called you James Bond. Of course he did.

And now we are here Lil Bro.  

Today, after 13 years of battling an adult-onset mitochondrial disease, your electric wheelchair is on it’s way.

And after 13 years, I think I am ready to truly tell your story if you will let me.

Ryan, you are amazeballs, and your head still smells kinda okay.

And your boys are good humans….but their feet smell…..seriously.

 And I am your big sister- making sure the milk has not turned.

But Life has turned, as it does. Keep being unstoppable.

Ya’ll have been on this journey with us for a while and we cannot tell you how grateful we are. In four short days we will climb up Freemont Pass, battle Battle Mountain, stop for a second to take in the view and because it’s me, shed a tear or two.  

As we have continued to support this clinic for almost 15 years, our financial commitment is notable. What has been most impactful is the ability to diagnose mitochondrial myopathies accurately and quickly. Genetic mutations cause mitochondrial disease. Our genes contain the information to make functional molecules called proteins. If a genetic mutation is significant, the production of that protein is lacking or nonexistent. Our cells depend on these proteins to thrive- as these proteins are not being created, cells start to die off and organ systems are compromised. 

What is AMAZING is that in some genetic mutations, we can isolate what protein is not being created and we can supplement. The most notable supplement we provide that can alter the disease progression is CoQ10. Our clinic has several families that are dependent on CoQ10, not just as a supplement they should be taking to help mitochondrial function but CoQ10 is protein that is missing and is vital to stop disease progression. 

How AMAZING that our TEAM provides funds to distribute CoQ10 to these families? This therapy with CoQ10 is just the tip of our research. Next step is looking into supplementing with different amino acids, dependent on the genetic mutation. It’s hard to believe 15 years ago this clinic was almost shut down to now identifying these complex genetic diseases earlier, to providing therapeutic supplements to alter the progression of these horrible diseases. 

Ya’ll are making a difference to so many families. 2023 Courage Classic Bicycle Tour: Summits for Samantha – Children’s Hospital Colorado Foundation (childrenscoloradofoundation.org)

Thank you.