Category: Nitty Gritty Dirty Grief
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Jacob- For Mitochondrial Awareness Week- by Maria
Tonight’s post is from our Vice-President and Mom-to-Jacob; Maria. Jacob and Samantha were very similiar in thier presentations. I am often reminded of Samantha when visiting Jacob. Here is their story: I often get the question “tell me about your son Jacob”. This is what I would tell you, if you are… His Doctor: Jacob…
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Mitochondrial Awareness Week!
This week is Mitochondrial Awareness Week. In honor of this week, we have a different blogger who will post about their life with Mitochondrial disease on www.miraclesformito.org. I will also share these here. Here’s mine from yesterday: I have thought a lot about this post and what I want to say….the importance of advocacy, the…
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First Mitochondrial Day in Colorado!
I am continually amazed and humbled by what people can do we when band together. Thank you to everyone who made this day possible: Mito Day in Colorado
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To Remember
This evening I listened to an interview with a mother who had lost her daughter in Tower 1. Her concern was that as time went on people would forget what happened on 9/11 and people would forget her daughter. I understand this, as time moves forward, I think about Samantha everyday but not everyone does.…
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United Flight 203 to LaGuardia
Airplane travel still continues to crack me up. I always feel like I’m a bit outside of my body when I travel. I also feel like people are a bit out of their mind when they travel. It is quite the observation on human behavior. And certain things still crack me up….. There is the…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 