Category: The Samantha Years
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Homeward Bound!
Samantha has done a great job of showing the doctors what they needed to see. Such a good job in fact, that we are able to go home tomorrow (Wednesday) morning! Whoo Hoo!!! So, what did we find out? Samantha’s seizures are primarily in the left frontal lobe. She does however have some other ‘discharges’…
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Samantha’s long night
Samantha and I spent the night battling evil catheter nurses, seizures and begging for drugs like a junkie on Hollywood Blvd. Sound like fun? Well at least the coffee is free. Kids who have muscle issues sometimes have a hard time emptying their bladder..you know the song…the hip bone’s connected to the leg bone? Well…
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Welcome to Samantha Watch 2008
First day in the hospital! Samantha is hooked up and I’m watching squiggly waves on the monitor now. She had one seizure….as soon as the last electrode was placed on her head she gave a little show and then fell asleep for 4 hours. I think it was the airplane glue. Since the eletrodes have…
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Hope Floats
So it’s been a year. A year ago on this Sunday we were sitting in the E.R at Children’s watching grim-faced doctors run in and out of our room, order tests, return with results and order more tests. 365 days. I am celebrating by having a piece of fabulous, home-made, made from scratch, double-layer, chocolate…
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My Birthday- The Gift of a Village
It takes a village to raise a child. In the case of my child it takes a very, very large village with a good pharmacy. We are very lucky that the most active villagers are Samantha’s grandparents. I know this isn’t always the case and I am continually counting my lucky stars. My birthday weekend…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 