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Continue reading →: Where Everybody Knows Your Name
United flight 403 is taking me back to Colorado. Back to real life; back to a place where distinctions of phenotype and genotype are not topics of debate, back to where no one really talks about the phenomenon of allelic hetrogeneity. I am ready to be home. I am also…
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Continue reading →: If we were Vampires
Hubs and I spent the last week in Vermont and upstate New York with dear friends. A friends daughter was getting married and we were lucky enough to attend. Situated in the Green Mountains lies the estate of Abraham Lincoln’s only child to live into adulthood; Robert Lincoln. The grounds…
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Continue reading →: Does trauma gives you a hall pass? Someone should tell the hall monitor
I posted something cryptic on Facebook Saturday. It caught a lot of attention from my tribe but it really wasn’t a big deal…. Nothing like seizures, mitochondrial strokes or premature death. I joke because I can. Because I have survived these things. I watched the EEG of my daughter explode.…
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Continue reading →: YOPP!
“We’ve GOT to make noises in greater amounts! So open your mouth lads! For every voice counts!” Ah, thank you Dr. Seuss. Rare diseases are tough. And made even more challenging when one constantly has to explain the severity of mitochondrial disease. Energy…..tired….. But so tired that its hard to…
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Samsmom: Life, Joy, Loss and Loving your Mitochondria 