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Continue reading β: The Power of your Donation
Ya’ll have been on this journey with us for a while and we cannot tell you how grateful we are. In four short days we will climb up Freemont Pass, battle Battle Mountain, stop for a second to take in the view and because it’s me, shed a tear or…
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Continue reading β: Beautiful, Broken Me and LP
I disappeared in May. I disappear often, which can be a tad frustrating to my tribe. I emerge unpredictably like a rabid squirrel, looking around, wondering where everyone went, only to hear their reply. ‘We thought you had left.’ And I do leave, but I always come back in some…
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Continue reading β: From a $12 test
Yesterday was Mother’s Day. Mother’s Day and I have complicated relationship. I love Moms. I love my Mom, I love my friends who are Moms, I love the people who have Mothered me along this road of life. This tribe of women has influenced me, held me on high, approached…
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Continue reading β: Happy Rare Disease Day!!!
I’m a tad late to the party but I could not let today pass without wishing you all a Happy Rare Disease Day! A rare disease is a condition that impacts less than 1 and 2,000 of us. Did you know that between 3.5-5.9% of us have a confirmed, diagnosed,…
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Continue reading β: Rocks and Hard Places
I’ve been writing for a local publication- this young family was fantastic, so fantastic I thought I would share π βIt is not the mountain we conquer, but ourselves,β Sir Edmund Hilary. Itβs not easy to keep up with the Jonesβs. In August, Tanner and Tyler Jane Jones will have…