Samsmom: Life, Joy, Loss and Loving your Mitochondria

Samantha is two years old today! YAY Sam!

We said goodbye to the first year last night in the Emergency Room. Samantha had a series of seizures this week. Last night we realized it was a urinary tract infection causing her problems. Not wanting her to have a bad birthday, we loaded her into the car last night to ‘nip this in the bud’ so to speak.

As the clock ticked towards midnight I became really antsy. Samantha cannot start her second birthday in the hospital. She just can’t. We needed to be out before midnight. I parked myself in the hallway with my arms crossed staring the nurses down. Finally at 11:45, we were sent home with antibiotics and discharge papers. Whew!

Today Samantha is sleeping comfortably (still) upstairs. She missed her pool-playdate birthday celebration but seems no worse for the wear. I however, am stuck with 36 birthday cupcakes. Come on by if your blood sugar is low.

The urinary tract infections defined our first year. As I sat in the E.R. telling the doc that I would like to cath her instead of the nurse because I “know where the goods are” I felt it ironic that we were here four hours before her birthday. Ah, what we learn in a year. I told Samantha that as we say goodbye to one year tonight, we are also saying goodbye to these nasty UTI’s….let’s hope her bladder listens.

Happy, happy birthday to beautiful, complex, determined, life-changing Samantha! We love you.