Jack and Ella drew me a Get Well Picture!
First you have to eat cookies for drawing energy.
I hope to copy Ella’s fashion sense someday.
That’s a good looking train Mr. Jack. Just as long as it’s a choo choo outta here….
Welcome to Samsmom. I'm Heather and this is my journey as we navigate love, loss, rare disease, hope and resilency. Our family carries a POLG-1 genetic mutation that took my two children, Jack and Samantha and most recently, my brother Ryan. It's not an easy place to be, but here we are- with humor, love and grace, here we are.
Life, Grief, Hope, Joy, Writing it Out and Loving your Mitochondria:
Welcome to Samsmom. I'm Heather and this is my journey as we navigate love, loss, rare disease, hope and resilency. Our family carries a POLG-1 genetic mutation that took my two children, Jack and Samantha and most recently, my brother Ryan. It's not an easy place to be, but here we are- with humor, love and grace, here we are. 
Heather, Bart, and most important Sam! I am glad to hear that all is well or getting better. She is growing into a beautiful little girl. I am glad that you stand up and request for certian things to be done. After all, who knows best besides mom. I so happy that she is in a big girl bed. She is lucky to have such a big support group who wouldn’t want to get better! Our thoughts and prayers are with you! Jay, Lacey, and Kendall.
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