Month: November 2009
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National Epilepsy Month
I would say “Happy National Epilepsy Month” but there is nothing happy about epilepsy. Epilepsy is a nasty, scary, misunderstood disease. According to the epilepsy foundation, A seizure happens when the electrical system of the brain malfunctions…. Unfortunately, the brain is the most studied yet most puzzling part of the human body. Perhaps that is…
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Just Being 3
Samantha was fussy this evening and nothing seemed to work. I held her…and that didn’t help. I thought maybe she just needed to squirm around on the floor. Nope Lay on your belly? Heck no. I became worried. Is something wrong? I took her temperature; normal. I cath’d her; which came out fine. I suctioned…
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Love
If you could harness love as an alternative form of energy…. You could have lit up the city of Denver, maybe even Manhattan, the pyramids, the taj mahal….. Based on the amount of love generated from the book signing yesterday. And that’s pretty cool. People braved the snow and the cold in order to hear…
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Can I Hold You Tight Enough?
Sometimes after a tough week…. When our precious, fragile community seems to be on it’s knees… When kiddos we know and love have been hospitalized, poked, prodded and even induced into a coma so that their poor brain can stop seizing… I place Samantha on my lap, And smell her sweet breath, And kiss her…
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The little things…..
Today at school Samantha’s teacher asked everyone to pick a partner to go outside. Samantha was sitting in her chair when one of the new little boys came up to her on his own, touched her shoulder and said, “Samantha will you be my partner?” He approached her left side which is a tough side…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 