Samsmom: Life, Joy, Loss and Loving your Mitochondria

Late

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Hschichie

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It is late….

And I am tired…..

Too tired to post…

but my head feels like a pot of Earl Grey tea with so many ideas brewing in my brain

We had a GREAT weekend at Vail. We celebrated Pops’ birthday and SKIED…thanks to a vigilant, generous, Nonnie and Aunt Jen watching Samantha in the condo……

And tonight I attended my first board meeting at Foothills Gateway….

And I talked to parents of older children whose disabilities are just as severe as Samantha’s…

And those parents still laugh, smile and even get away for a weekend despite years and years of the vigilant, high maintenance parenting required with these fragile kiddos.

I left feeling lighter and quite hopeful.

Long weekends are the best.

2 responses to “Late”

  1. Lowrie Avatar
    Lowrie

    I thought about the family during the past days and the Big Guy's birthday celebration!! So glad you all had a great time! You had wonderful people with whom to spend the weekend!! . . . We do have amazing blood running through our veins!!Love you all so much!!Lowrie

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  2. Amanda Avatar
    Amanda

    Foothills Gateway…this sounds new and fun. I'm excited to hear about it – whatever it may be. ENVISION just sucks and I am trying to cut my ties, not because I don't want to help this population thrive but because I feel like the person at the top does not hold those same desires. Let's get out in the next week or so.

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Hello,

I’m Heather

Welcome to Samsmom and over 15 years of stories about love, loss, grief and the process of moving forward. It’s not always pretty here, but it’s honest. I’m a writer, a fund raiser, rare disease advocate, Mom of two Littles who are no longer here, Wife of Hubs, Aunt to the Phews, daughter, friend and unapologetically me.

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