Samsmom: Life, Joy, Loss and Loving your Mitochondria

Late

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Hschichie

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It is late….

And I am tired…..

Too tired to post…

but my head feels like a pot of Earl Grey tea with so many ideas brewing in my brain

We had a GREAT weekend at Vail. We celebrated Pops’ birthday and SKIED…thanks to a vigilant, generous, Nonnie and Aunt Jen watching Samantha in the condo……

And tonight I attended my first board meeting at Foothills Gateway….

And I talked to parents of older children whose disabilities are just as severe as Samantha’s…

And those parents still laugh, smile and even get away for a weekend despite years and years of the vigilant, high maintenance parenting required with these fragile kiddos.

I left feeling lighter and quite hopeful.

Long weekends are the best.

2 responses to “Late”

  1. Lowrie Avatar
    Lowrie

    I thought about the family during the past days and the Big Guy's birthday celebration!! So glad you all had a great time! You had wonderful people with whom to spend the weekend!! . . . We do have amazing blood running through our veins!!Love you all so much!!Lowrie

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  2. Amanda Avatar
    Amanda

    Foothills Gateway…this sounds new and fun. I'm excited to hear about it – whatever it may be. ENVISION just sucks and I am trying to cut my ties, not because I don't want to help this population thrive but because I feel like the person at the top does not hold those same desires. Let's get out in the next week or so.

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Leave a reply to Lowrie Cancel reply

Hello,

I’m Heather

Welcome to Samsmom and over 15 years of stories about love, loss, grief and the process of moving forward. It’s not always pretty here, but it’s honest. I’m a writer, a fund raiser, rare disease advocate, Mom of two Littles who are no longer here, Wife of Hubs, Aunt to the Phews, daughter, friend and unapologetically me.

Let’s connect

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