Samsmom: Life, Joy, Loss and Loving your Mitochondria

Quick Update

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Hschichie

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Samantha and Bart are lying in bed watching Monsters vs. Aliens

Samantha has been smiley, cuddly, awake and comfortable today….the first time in days. Her tum doesn’t seem to mind the hiatus

She’s on an I.V. with a low dose of glucose so we can continue with the ketogenic wean. So far, no seizures

Signing off to spend some time with the family

Thank you, as always for your love and support

One response to “Quick Update”

  1. Amanda Avatar
    Amanda

    So happy to hear the news! Muah

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Hello,

I’m Heather

Welcome to Samsmom and over 15 years of stories about love, loss, grief and the process of moving forward. It’s not always pretty here, but it’s honest. I’m a writer, a fund raiser, rare disease advocate, Mom of two Littles who are no longer here, Wife of Hubs, Aunt to the Phews, daughter, friend and unapologetically me.

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