Month: April 2010
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When the Bat Phone is Busy
We have been spoiled by the Special Care Clinic at Children’s Hospital. Our wonderful Nurse B who operates the phone, knows my voice, knows Samantha, knows our case and has a wonderful way of listening and calming me down when Samantha seems really sick. She will also move mountains to get us in at the…
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The Waiting Game
Alas….so we wait….. for lab results, for a doctor, for a room, for a little direction on what the next 12 hours will look like. Plans are moved, altered, canceled, tweaked, rearranged; new plans are made. Success takes on a new meaning…..an I.V in only three tries, a comfortable child, a move out of the…
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"For us there is only the trying….
…..the rest is not our business” T.S. Eliot Samantha is not on antibiotics….for the first time in months. Am I a little nervous that these nasty infections will come back? Oh yeah. But right now we’re holding steady. We’re trying some things that are a little non-traditional but what the heck, “for us there is…
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Heady Mama- By Samantha
Mama is a bit full of herself the past couple days. Her attention should be fully on ME but lately she’s like a giddy school girl. She gets like this when she gets published. This week she’s seen her name in print twice so go figure, she’s queen of the world. Earlier this week her…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 