How can you not love Churchill?
He also said, “never give in, never give in, never, never, never”
and my favorite…
“We are all worms. But I do believe I am a glowworm.”
Tonight my war is with seizures. After 24 hours, seizures every ten minutes, I.V. Keppra,5 doses of Ativan, one dose of Phenytoin and a threat to go down to the PICU if we did not ‘behave‘ I feel like tonight…..perhaps…we have won the battle.
Won the battle but I am not confident we have won the war.
Room 831 is command central where the seizure enemy is monitored, watched for aggressive behavior and we are in constant contact with our ‘troops’.
We have lost some soldiers, we no longer have our all important ketones.
I am realizing more and more that those ketones were some pretty heavy duty little seizure fighters. But that’s okay, we will assess our losses, move on and perhaps employ some new seizure meds to help Team Samantha.
Our goal? A seizure free night. Doesn’t sound like a lot but battles are played out one move at a time.
As Winston says…..“It is a mistake to look too far ahead. Only one link in the chain of destiny can be handled at a time.”
….To tonight.
Love,
The Glowworm
Samsmom: Life, Joy, Loss and Loving your Mitochondria 
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