Samsmom: Life, Joy, Loss and Loving your Mitochondria

I am not a fan of seizures.

And I have forgotten what it’s like to have a child with uncontrolled seizures because for 2 1/2 years we had good seizure control on the diet.

Bettter-than-I-thought seizure control…..

Now we don’t really have good control and I miss it.

Alas, time to tweak another med.

Samantha had a good two weeks. Her lipase has been out-of-control, through the roof high but she has been in good spirits. So, we have been in good spirits.

But today, in the midst of a crazy rainstorm and bumper to bumper traffic on I-25, she had a seizure, and another seizure, and another. I pulled off to give her rescue med but it was like throwing a glass of water at a burning house.

Poop.

When your rescue med doesn’t work, it’s time to call in the professionals. So I did. We were told to turn back around and head to Children’s

So we did, and proceeded to battle bumper-to-bumper traffic going South.

I swear, families who have seizures should have a little siren on top of their car to get them through crazy traffic.

I would only use my little siren during seizure times.

I promise.

Upon arriving at Children’s we found out Samantha had a temp. Possibly the reason for the seizures? Who knows.

We do know we’re camping out on floor #8 tonight. Hoping for a quick stay.

XO-
Us