Author: Hschichie

I am making cookies tonight for my friend’s dad. I mix the butter, sugar, flour with a spoon. In frustration, toss the spoon in the sink and dive in with my fingers. I feel the dough in my hands. Knead, turn, mix, knead, turn, mix It calms my restless head, my restless heart and my…

I get attached to my body parts- as flawed and imperfect as they may be, they are mine and mine alone. The bone on bone knee to your left? You can call him Rusty. If you spend any time with me, especially doing anything active like……walking? You notice Rusty, you see Rusty’s troubled past. I’m…

My Mama and my Uncle are transcribing my Great Grandma Burbank’s journals. Today they sent 1941 and I am intrigued. Grandma Burbank is my Granny’s Mama- my Granny who just passed this summer. We grew up with stories about how very, very poor the Burbank side of the family was; squirrel was a good meal,…

I’ve always enjoyed being a tad unique, marching to the beat of a different drum, channeling my inner Heather. Today is Rare Disease Day- a globally-coordinated movement focused on rare diseases and the 300 million people impacted globally by these conditions. As much as I’ve liked being my unique person, I wish I didn’t know…

Yesterday was 2-22-2022. And if you were in second grade, you were in grade 2 on 2-22-2022. One of my nephews got to celebrate being in grade 2 yesterday. His school did some special activities unique to the day and his grade. One was ‘what will your life be like at 22 years old?’ This…

I’ve been thinking about these delights quite a lot lately. What qualifies as a delight? There are quick shots of delight- they dance onyour tongue like dark chocolate. And then there are delights that brew in your head. They are not immediate-it is not instant. Perhaps a process that sooner or later becomes a delight-a…

I talk often about how much I love you all. The GIFT I absolutely feel in having amazing people in my life. It is a gift. YOU are a delight. We are older. The fragility of life and our time on this earth has become more relevant. A month after this photo was taken, one…

I am trying to move more. Time of Covid, working from home shuffling 20 steps from my bedroom to my study, to sit for hours…. and hours…. Is not healthy. And I know I’m better, I’m clearer, I’m happier when I move. I KNOW that. Recently the American Heart Association came out with a study…

Mitochondrial disease is a horrible diagnosis- it is progressive, heartbreaking and all around just awful. But in the midst of the awfulness, some amazing people come into your life. One of these amazing Humans is my friend Calvin. I have known Cal for 15 years. Tomorrow this amazing human turns 17. If you know Calvin,…

This really isn’t Junior and I. But maybe it’s our alter egos. Junior out on the prairie, we’re riding along having just rescued a calf separated from his mother……The sun setting between his cute little horsey ears. Today I volunteered my Therapeutic Riding Center as a horse lead. Junior is my very patient horse. We’ve…