Category: The Samantha Years
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The Waiting Game
Alas….so we wait….. for lab results, for a doctor, for a room, for a little direction on what the next 12 hours will look like. Plans are moved, altered, canceled, tweaked, rearranged; new plans are made. Success takes on a new meaning…..an I.V in only three tries, a comfortable child, a move out of the…
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"For us there is only the trying….
…..the rest is not our business” T.S. Eliot Samantha is not on antibiotics….for the first time in months. Am I a little nervous that these nasty infections will come back? Oh yeah. But right now we’re holding steady. We’re trying some things that are a little non-traditional but what the heck, “for us there is…
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Blogiquette
I am preaching to the choir here but I have something stuck in my craw and I must clear it…. Bear with me. Blogiquette….how do you behave when on someone’s blog? I only ask because I have seen some nastiness out there lately….some mild, some downright appalling. I wonder what makes people feel that they…
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Lovely Easter
It was a good Easter! The last three Easter’s of Samantha’s life have been hard. Easter #1: We had just taken Samantha home from the hospital after her diagnosis of Infantile Spasms She was on heaping doses of meds and proceed to seize her way through Easter. Easter #2: Samantha had an undiagnosed UTI and…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 