Tag: mitochondrial disease
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What You Must Know
I think my last post scared some people….Or made them worry. But here is what you must know….I can’t continue this blog without being perfectly honest, pouring my heart as if I have no audience and working through this nasty business of grief. So let’s get to it. My Auntie Trace sent me this poem…
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Jacob- For Mitochondrial Awareness Week- by Maria
Tonight’s post is from our Vice-President and Mom-to-Jacob; Maria. Jacob and Samantha were very similiar in thier presentations. I am often reminded of Samantha when visiting Jacob. Here is their story: I often get the question “tell me about your son Jacob”. This is what I would tell you, if you are… His Doctor: Jacob…
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First Mitochondrial Day in Colorado!
I am continually amazed and humbled by what people can do we when band together. Thank you to everyone who made this day possible: Mito Day in Colorado
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To Remember
This evening I listened to an interview with a mother who had lost her daughter in Tower 1. Her concern was that as time went on people would forget what happened on 9/11 and people would forget her daughter. I understand this, as time moves forward, I think about Samantha everyday but not everyone does.…
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What is the Call???
It would be easy to give up the fight. Because it doesn’t really matter. I don’t have to go to Children’s. Because we don’t have a child who needs to be there. It would be easy to turn our back on our mito cause. Because we no longer have a mito kiddo. What difference can…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 