Nitty Gritty Dirty Grief

What is the Call???

It would be easy to give up the fight.

Because it doesn’t really matter.

I don’t have to go to Children’s.

Because we don’t have a child who needs to be there.

It would be easy to turn our back on our mito cause.

Because we no longer have a mito kiddo. What difference can we make….really?

But every time I feel overwhelmed, insignificant and uncertain of the next step, someone reaches out and reminds me why this is important and why we fight to raise awareness, money for research and education.

Because mitochondrial disease sucks my left toe.

A 26 year old mom reached out to me last week and introduced me to Mabel. I hope her Mama doesn’t mind me posting but this little one-year old is so stinkin‘ cute and her mom is so very honest and determined in this tough, hard fight.

Welcome Mabel and Mabel’s Mama. You make me want to be a better advocate, to fight harder and remember that our own Mito girl is not here in body but certainly in spirit.

Thanks for the kick in the pants.


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