Samsmom: Life, Joy, Loss and Loving your Mitochondria

Welcome to Samantha Watch 2008

Published by

Hschichie

on

First day in the hospital! Samantha is hooked up and I’m watching squiggly waves on the monitor now. She had one seizure….as soon as the last electrode was placed on her head she gave a little show and then fell asleep for 4 hours. I think it was the airplane glue. Since the eletrodes have to stay on a squirmy baby for 5 days, they glue them onto her head with airplane glue and a small hairdryer thing…kid you not. An hour of breathing glue fumes….whooo! Stoney, zoney, pony.

We had a visit from our pharmacist as we tried to sort out Samantha’s meds. After explaining our drug protocol, he decided to keep me in charge of Samantha’s medication distribution. “I wouldn’t want to mess with your mojo.” He told me as he was on the way out of our room. Yeah! Don’t be messin’ with my mojo man.

That is about the extend of our day! Lots of visits from nurses and doctors…nothing definate yet. The new hospital is great and on-demand movies include Cinderella and Harry Potter. Could you ask for anything more? Really.

My mojo is tired; I’m hoping our baby girl is too. Here’s to tomorrow and more answers.

XO-
Schichtel Clan

3 responses to “Welcome to Samantha Watch 2008”

  1. Kim, Lance, Colten & Devon Avatar
    Kim, Lance, Colten & Devon

    Come on answers – the Browns are all pulling for you. Give Sam a kiss for us.

    Like

    Reply
  2. Heidi Avatar
    Heidi

    You need to add pharmacist to your resume! Go MoJo!Give Sam a squeeze from all of us!Love,Barry, Heidi, Jack and Ella

    Like

    Reply
  3. Amanda aka Taz Avatar
    Amanda aka Taz

    I was curious how they were going to keep the little thingimigigs on her little head so long…I hope you at least got a kick out of the buzz it created, not sure what else is good about airplane glue! If the weather holds up we hope to visit tomorrow. Keep your head up and we are sending “meaningful EEG study karma” your way.

    Like

    Reply

Leave a comment

Hello,

I’m Heather

Welcome to Samsmom and over 15 years of stories about love, loss, grief and the process of moving forward. It’s not always pretty here, but it’s honest. I’m a writer, a fund raiser, rare disease advocate, Mom of two Littles who are no longer here, Wife of Hubs, Aunt to the Phews, daughter, friend and unapologetically me.

Let’s connect

Join the fun!

Stay updated with our latest tutorials and ideas by joining our newsletter.

Recent posts