Samsmom: Life, Joy, Loss and Loving your Mitochondria

Homeward Bound!

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Hschichie

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Samantha has done a great job of showing the doctors what they needed to see. Such a good job in fact, that we are able to go home tomorrow (Wednesday) morning! Whoo Hoo!!!

So, what did we find out? Samantha’s seizures are primarily in the left frontal lobe. She does however have some other ‘discharges’ throughout the brain therefore Samantha is not a candidate for surgery right now. They will take a look as she gets older or if the seizure type changes.

Here’s the good news, her infantile spasms are still gone and her jerky movements are just ‘Samantha movements’. Our neurologist felt really positive about the EEG and said it has really improved from the last couple months. The diet has been a positive change and she wants us to remain on one seizure med. Whew! Not too bad for a days work!

We are signing off for the night. Thanks so much for all the positive thoughts!

XO-
Us

6 responses to “Homeward Bound!”

  1. Anonymous Avatar
    Anonymous

    Good news for all. We were planning a Thursday trip to TCH but very happy that you will be resting at home. Way to go SAM!!Christy, Pete and Kayla

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  2. Anonymous Avatar
    Anonymous

    That’s awesome that you guys get to go home already! Scott and I were coming tonight with brownies – oh well!! Love, Tracy and Scott

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  3. Amanda aka Taz Avatar
    Amanda aka Taz

    Fantastic Samantha!!! I am so happy they have figured something out. One med is completly tolerable too.

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  4. Amanda aka Taz Avatar
    Amanda aka Taz

    Fantastic Samantha!!! I am so happy they have figured something out. One med is completly tolerable too.

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    Reply
  5. Anonymous Avatar
    Anonymous

    You go girlz! Can’t believe I’m proud that Samantha had seizures. Hugs to everyone.Laura, Scott and Dylan

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  6. Anonymous Avatar
    Anonymous

    Just logged on to see how things were going. Glad to hear that you were able to go home from TCH early. Our love to all of you!Jayne, Steve and family

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Hello,

I’m Heather

Welcome to Samsmom and over 15 years of stories about love, loss, grief and the process of moving forward. It’s not always pretty here, but it’s honest. I’m a writer, a fund raiser, rare disease advocate, Mom of two Littles who are no longer here, Wife of Hubs, Aunt to the Phews, daughter, friend and unapologetically me.

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