Month: April 2010
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The Courage Classic
It’s that time again! The Children’s Hospital Ride usually fills up by the end of May. Come join us!
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The discharge diaries
Ah, the day of the discharge…busy, hectic, chaotic…. We needed to go home with an I.V. pump, I.V fluids, a new formula bag (I forgot my spare) and new meds. I needed to be trained on said I.V. equipment AND we needed to be out by 2:00 in order to make our mitochondrial appointment. This…
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We are home!
And we are pooped…. We love you all and are so touched you continue to be on this journey with us. There was not a time where we felt alone or lonely. Thank you. Good night.
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My Peeps- By Samantha
Mama gets so worked up about ME…especially when we’re here on the 8th floor. I keep telling her that even though we’re chillin‘ at the CH, life outside goes on and sometimes, it’s good to tell stories about other people; especially my good friends. Here’s a little snippet about my buddy Kayla. Kayla is very…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 