Samsmom: Life, Joy, Loss and Loving your Mitochondria

Itsy Bitsy Teeny Baby Steps……

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When Samantha died, we started a memorial fund.


And thanks to your generous contributions, we raised a significant amount of money.

And I thought…..what do we do with these generous contributions????

We could write a blanket check to Children’s….but we don’t know where it would go…

We could write a blanket check to the UMDF, for mitochondrial research but again….would anyone know who gave it? And why? Would anyone there care about our story with Samantha? Would anyone care about our story with Jack?

I needed more. You…..dear contributor…..deserve more.

So we have started a group for mitochondrial awareness in Colorado. I don’t ever want another family to ever feel as lost and hopeless as we did.

We have named our group Miracles for Mito. (Go and ‘like’ us on facebook!)

Today I met with the Colorado non-profit development center to establish ourselves as a legitimate non-profit with a real 501-c3 number.

We find out in the next two weeks if our application met the non-profit requirements and if we are accepted.

Keep your fingers crossed.

At times we are swimming upstream. At times the meaning behind what we are trying to accomplish seems insurmountable…..who knows what a mitochondrial disease is? Why should they know this? Why should it matter to them?

Every 30 minutes a child is born that will develop a mitochondrial disease before the age of ten….

That fact….if nothing else….should keep me in game. That fact and the fact that Lil’ Miss won’t let me stop taking these teeny, tiny, baby steps to make a difference…

….we just might make that difference.

Crossing fingers and toes….

4 responses to “Itsy Bitsy Teeny Baby Steps……”

  1. Elizabeth Avatar
    Elizabeth

    Wonderful — and have you ever considered hooking up with the organization Family Voices? I know several women who work for the Colorado chapter — they might also be able to help as your non-profit progresses…

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  2. KWombles Avatar
    KWombles

    That sounds like a great use of the funds and a way to make a difference. Going to facebook now to like it!

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  3. Amanda Avatar
    Amanda

    Hooray! As a J & S fan, I can not wait to contribute! you will take these baby steps and nurture it as it grows, probably larger than you van envision at this time 🙂

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  4. MJ Morgan, Writer Avatar
    MJ Morgan, Writer

    Crossing finger, toes, and knuckle hairs … well, I would if I HAD any knuckle hairs … :)~Mj

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Leave a reply to MJ Morgan, Writer Cancel reply

Hello,

I’m Heather

Welcome to Samsmom and over 15 years of stories about love, loss, grief and the process of moving forward. It’s not always pretty here, but it’s honest. I’m a writer, a fund raiser, rare disease advocate, Mom of two Littles who are no longer here, Wife of Hubs, Aunt to the Phews, daughter, friend and unapologetically me.

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