Category: Life Today
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Mito Awareness Week- Dreams
You may say I’m a Dreamer. I had many dreams before mitochondrial disease. They were not extravagant. Or Outrageous. Sure, an Oscar nomination would have been lovely, or a Pulitzer prize, Olympic gold in the downhill…. I did have one, seemingly achievable dream. I have always wanted to be a mom. Many things in life…
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JOY! And mitochondrial awareness week :)
It is Mitochondrial Awareness Week. Are you ready? Are you ready for the onslaught of your friends posting about this crazy disease you have never heard of or maybe heard of in a bio class your sophomore but fell asleep to because it was so boring??? That is this week We post because we have…
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Joy
My Bestie Ginger took this photo of me after the Courage Classic. I am lying on the asphalt because my legs were super-mad at me, I was tired, slightly delirious. But I was something else. So stinkin’ joyful I could hardly talk. Seriously. There. Are. No. Words. And I’ll tell you why. I’ll tell you…
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This Shark, Swallow you whole
This photo was from my 40th birthday- six months after we lost Samantha. A friend quoted it perfectly, “And then Heather opened her mouth, took all of her friends and swallowed them whole.” And I would have. Because I was so empty. Oh yes dear friends, swallowed you whole. Anaconda ain’t got none… But that was…
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Hope is Being Able to See that there is Light- Despite all of the Darkness- Desmond Tutu
A mitochondrial diagnosis is dark. And lonely. Here is where your donation will go to provide some hope and light. Every 15 minutes a child is diagnosed with a mitochondrial deviation that will manifest by age ten. Since mitochondria generate energy within muscle and organ cells, clinical problems such as seizures, heart and liver issues, vision…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 