Category: The Samantha Years
-
Serenity Now!
It’s been a hell of a day. That’s right…..I skipped ‘quite a day’….. Passed over ‘heck of a day’…. And went straight to hell. The good news is (knock on wood, knock on wood) it’s day two and no seizures. The bad news is Samantha still has pancreatitis. Your pancreas secretes an enzyme called lipase.…
-
And even if my house fall down, I wouldn’t have a clue, because you’re near me
This is from one of my favorite songs. It’s by Dido and called Thank You….. Here’s what has happened in the last 24…. I left you all sad and scared but getting a handle on our unknown future. Around 8:00, we had 2 visitors donning our wonderful sign telling the seizures to stay away! Our…
-
Journey in the Unknown
Today we came to the conclusion that it’s time to take Samantha off the ketogenic diet. It’s been a good run; 2 1/2 years on this super high-fat, seizure controlling diet. But 2 1/2 years of eating nothing but olive oil, butter, cream and an occasional teeny, tiny carb has had its toll on her…
-
Thanks….
Tonight there is no cutesy analogy, no superheros, no dead customer service people. Just a note of thanks from us to you all. I often blog as a reminder that we are not alone in this fight for Samantha’s health. Along the way, I have met, and through you all created, a network of support…
-
When the Bat Phone is Busy
We have been spoiled by the Special Care Clinic at Children’s Hospital. Our wonderful Nurse B who operates the phone, knows my voice, knows Samantha, knows our case and has a wonderful way of listening and calming me down when Samantha seems really sick. She will also move mountains to get us in at the…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 