Samsmom: Life, Joy, Loss and Loving your Mitochondria

What does it mean to be Rare? We have one extra day in February this year! One more day to be with your family. One more day to catch up on that list that keeps nagging you. Another day just to be. And a day to rally around Rare Disease…

Ten years is a long time. If we’re lucky we get 8 or 9 (10?) decades in the precious world. Decades are defined in history; we talk about the 1960’s, the 70’s in chunks of events that forms our world today. How will our tween and teen years define us?…

I know this much is true: I feel grateful every, single day for all of you in my life. I am grateful for this life; no matter how hard it has been at times; I am truly grateful. I am grateful my lungs take in air, my heart pumps my…

I love pretty things. I do. As a little girl, I loved dressing up. I loved make-up. Playing with my Grandma Dodie’s lipstick. When I was three my Papa and Dodie bought me a new dress with pink ruffled undies. They took me out to dinner. I ordered a Shirley…

Tomorrow is World Kindness Day. I have a crush on this day. As I sit here and type, I am thinking of ways I can be kind tomorrow and perhaps incorporate acts of kindness into my life beyond tomorrow. I have been the recipient of many acts of kindness and…