After a lovely birthday lunch with Aunt T, we went to see Dr. E about Samantha’s junky lungs.
They have been ‘junky‘ for two months. For most it’s not a big deal, just a winter cold. But Samantha doesn’t have the strength to cough up what lands in her lungs.
And that could lead to pneumonia. We don’t like pneumonia.
Dr. E was concerned that the lower lobes of her lungs sound a bit ‘crackly’. So she ordered rubber cups for her chest. The new protocol is that we lightly beat her chest with the rubber cups for ten minutes twice a day….this breaks up the goo that settles in her lower lungs. The rubber-cup-chest-beating is followed by suctioning.
“I hate suctioning.” I told our respiratory therapist.
“Yeah, I’ve been doing this for 20 years and I still don’t like to suction kiddos,” he said.
I told him this bit of information didn’t make me feel any better.
Dr. E and I met Maria for a coffee after our appointment. It’s crazy and so comforting to have such a group at TCH.
Tonight we beat Samantha’s chest for ten minutes. I tired to come up with some sort of rhythmic song to sing but I got nothin‘. She actually liked the chest pounding….I think it kind of tickled….the suctioning? Not so much.
Still no seizures since the fat increase….crazy.
Happy Weekend!
Samsmom: Life, Joy, Loss and Loving your Mitochondria 
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