Category: Nitty Gritty Dirty Grief
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If Mitochondrial Disease were Osama Bin Laden
I have a fantasy…… Mitochondrial Disease is sitting in its fat compound surrounded by its minions, rare double- recessive gene and complex undiagnosed metabolic disorder, feeling protected and secure. They are lounging in the lap of luxury, comparing notes on who has wrecked the most havoc on unsuspecting families. And then….suddenly, a group of doctors…
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Over at MFM tonight
Tonight you can find me over at Miracles for Mito, talking about our Canvas and Cocktails night! Click on the ‘about us’ link and that will take you to the blog. Check out my Picasso. Happy Sunday 🙂
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There’s a Fire Starting in My Heart
This is not an Easter post. Or maybe it is. It is about moving on, finding strength to grow from ashes, life after death. I guess it might be an Easter post. I have found solace in a couple things; exercise and angry Chick music. Combine them and I am indestructible. Yesterday my long ride…
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Today’s post is not mine
Today’s post does not come from me. It’s comes from one of Samantha’s dearest advocates….Sweet Caroline. Caroline is seven (gosh, I think seven, I should know this). Caroline is big sister to Max. Max and Samantha bonded in pre-school. As a result, Caroline and Samantha became close. To make things even more fun, I adore…
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It’s April
Ah April. Last year at this time we were in the hospital with Samantha. She had gone off the ketogenic diet because her little pancreas couldn’t handle the fat. It was the first domino in a line of dominoes….one thing after another. I remember watching her levels rise thinking, how much more can one little…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 