Books!

I’m starting to realize my book button is a little confusing 🙂

If you would like to buy a book and have it signed, click on the ‘Buy Now’ button to the left underneath the Blessing Bowl pic; This will send me an email and I can send you a book!

If you are in the Denver-NoCO area, just shoot me an email and we can coordinate a time to meet up. Perhaps over coffee? 🙂

If you are in the Loveland, Fort Collins area, come to the book signing party! (Send me a note if you’re interested and I’ll send you the details).

Chicken Soup books make GREAT Christmas presents!

But I Don’t WANT to be the Grownup!!!

About a month ago my friend Tammy got tickets to the midnight showing of New Moon. Now, I’m not the Twilight fan Tammy is. Come to think of it, I don’t KNOW a bigger Twilight fan than Tammy but I knew it would be a fun night and I hate to turn down an evening with the girls.

Midnight showing? Home at 3:30 in the morning? Heck yeah!

This week has been kind of tough for Samantha. We found out she has a UTI. We didn’t get her on the right antibiotics until four days into the infection. As the week has progressed, Samantha has become more and more uncomfortable.

Today she didn’t look so good. She was lethargic and so congested she was really working hard to breathe. So, we headed down to Children’s.

At 4:00 I called my friend Tammy and sacrifice my ticket to the New Moon gods. Damm…

At 4:30 we are sent home. The chest x-ray was clear. Her white cell count was normal and she was not running a temperature. But do to her lethargy and congestion, it’s assumed she has a virus.

UTI and a virus on top of that. Poor peanut.

But we’re going home! And I’m half tempted to call Tammy and tell her I’m back in.

But then I realize that Samantha needs to be watched, she needs to be suctioned and perhaps needs a couple additional meds tonight to keep her comfortable. Yes, hubby can do all that but the last thing I would want would be to return home, at 3:30 in the morning to a sick, distressed child that needs to be taken back down to Children’s.

And in her state, she needs a mommy on her ‘A’ game.

Shooba.

So I forgo New Moon and my jumbo box full of JuJu Beans. Perhaps it’s for the best, I was going with a bunch of ladies who are clearly for Team Edward and I’m a Team Jacob girl. That’s right ladies….lovin’ me some wolfman.

National Epilepsy Month

I would say “Happy National Epilepsy Month” but there is nothing happy about epilepsy. Epilepsy is a nasty, scary, misunderstood disease.

According to the epilepsy foundation, A seizure happens when the electrical system of the brain malfunctions….

Unfortunately, the brain is the most studied yet most puzzling part of the human body.

Perhaps that is why we still can’t figure out a cure to this debiliatating electrical malfunction of the brain. Many siezure drugs were discovered by accident; they were used as steroids, migrane medications or to control high blood pressure but somehow it was discovered that maybe they might work for epilepsy.

But it’s still not really known why they work. Not even the doctors….and trust me, there is nothing scarier than talking to a world-reknown epileptologist and having them shake their head and say “I’m just not sure what to do next.”

In honor of National Epilepsy Month, Samantha and I have lit a candle. We have lit it especially for our little friend Jacob who is still in the ICU at Children’s fighting seizures. We have lit it in hopes that even though his doctors are baffled and don’t know what to do next that they will keep searching for answers and a cure for our friend. We have lit it for his parents who have had to be strong for so long and want nothing more than to see their little boy look at them and smile.

We have lit it because we’re not quite sure what else to do to help. So when you go to bed tonight and think a little thought for Samantha, think a little thought for her friend Jacob too. Because we have to keep fighting for a cure. We just can’t give up on what we don’t understand.

Just Being 3

Samantha was fussy this evening and nothing seemed to work.

I held her…and that didn’t help. I thought maybe she just needed to squirm around on the floor. Nope

Lay on your belly? Heck no.

I became worried. Is something wrong? I took her temperature; normal. I cath’d her; which came out fine. I suctioned out her nose; which really made her mad!

Hubby’s out of town so I bounced around ideas with myself…what am I missing?

Finally it was Samantha’s bedtime. I laid her in bed, tucked her in and kissed her goodnight.

And she stopped crying.

Aaaahhhhh…..tired and cranky! Could that be it? A typical three year old problem? Funny how I can diagnose a UTI in minutes but it takes me an evening to figure out tired and cranky.

Enjoying a typical 3 year old moment.

Love

If you could harness love as an alternative form of energy….

You could have lit up the city of Denver, maybe even Manhattan, the pyramids, the taj mahal…..

Based on the amount of love generated from the book signing yesterday.

And that’s pretty cool.

People braved the snow and the cold in order to hear the Blessing Bowl, buy a book and support the Schichtel family. The circle of friends was amazing; people I knew in elementary school, people I knew in college, family friends and people I’m just starting to know.

Everyone talked, mingled and even shed a tear or two. Samantha’s mommy was a bit of a mess herself and could barely get through the story.

Once again, I am overwhelmed by our community and the people who support us. What moved me the most is that our little girl was held, loved and doted on the entire time….and it wasn’t by her parents! Samantha’s teacher rescued her from her stroller, Miss Christy took Samantha duty and even Uncle Ryan took a shift. I would look up from a book and think where is my daughter? only to find her cuddled in the arms of another loving member of Team Samantha. I am amazed and grateful for the lives she continues to touch, the people who have come into our lives because of our precious girl and the outpouring of love.

Seriously, we should harness this love stuff….pretty darn powerful.

My only regret is that I didn’t have time to talk to each of you. Let’s do lunch.

Once again, thank you, thank you, thank you 🙂

Can I Hold You Tight Enough?

Sometimes after a tough week….

When our precious, fragile community seems to be on it’s knees…

When kiddos we know and love have been hospitalized, poked, prodded and even induced into a coma so that their poor brain can stop seizing…

I place Samantha on my lap,

And smell her sweet breath,

And kiss her nose,

And feel her eyelashes blink against my cheek,

And think that I cannot possibly hold her closer or adore her more.

The little things…..

Today at school Samantha’s teacher asked everyone to pick a partner to go outside.

Samantha was sitting in her chair when one of the new little boys came up to her on his own, touched her shoulder and said, “Samantha will you be my partner?”

He approached her left side which is a tough side for Sammers but she purposely turned her head and looked right at him.

Samantha and her new friend went outside together.

Thanks new friend.

Sunny Days, Sweepin’ the Clouds Away…by Samantha

Mama is old!

But not as old as Sesame Street!

Sesame Street is so old today that Mama says she watched it as a little girl.

I asked her how she could find time to watch it when she was running from the dinosaurs!

That’s because I think she’s so old.

One of Mama’s favorite birthday’s was sharing a Cookie Monster cake with her Grandma Dodie. They smeared blue, cookie monster frosting on their teeth.

Probably to distract the dinosaurs.

Since Mama was a little girl, Sesame Street has grown to be broadcast in 140 countries. AND it was one of the first shows to talk about and feature kiddos in wheelchairs, with hearing impairments or other disabilities. That’s right, Big Bird’s focus has been on tolerance, empathy, inclusion and what us kiddos can do to make the world a better place.

Perhaps grown ups should be watching Sesame Street with me?

Just sayin’

HAPPY BIRTHDAY SESAME STREET!!!!

20 Years

Like any good Generation X’er growing up in the 80’s, I was a child of the Cold War and the culture associated with it. Who could forget that terrifying movie The Day After with the sobering nuclear attack scene? I can still recite Sting’s I Hope the Russians Love Their Children Too.

How can I save my little boy from Oppenheimer’s deadly toy?

Good Lord.

Mr. Gorbachev, open this gate. Mr Gorbachev, tear down this wall!

Still brings tears to my eyes.

I remember sitting in front of my grandparents Curtis Mathis crying as I watched the wall come down. I was 18; going to college in Boulder. I sat in my tie-dyed, patchouli scented t-shirt, young and idealistic and cried.

“This is the greatest event of my life.” I said (I was young!)

My grandfather shook his head. “There is nothing more dangerous than a unified Germany,” he said. “It will be world war three; mark my words.”

I couldn’t believe his words. We just prevented world war three! It’s over! It’s done! No bombs were dropped, no blood was shed.

Twenty years later I can understand his perspective. I don’t agree with it but I understand it. He grew up in the wake of WWI and lived through WWII. His idea of a dangerous world was (and still is) much different than mine.

Twenty years later and a day before Veteran’s Day….what does it mean; a world without this wall? It has been a tough week here in the States; shootings in Fort Hood and Orlando. Many people would argue that they don’t feel any safer in a post Cold War world. Many Eastern Europeans would argue that they preferred life under communist rule.

But you know what the big difference is?

People can talk about it.

People can meet about it.

People can even rally against it.

Last month thousands of Romanian workers rallied against pay cuts and no one was arrested. No one was taken away. It was a different country 21 years ago.

As our own country changes, we meet, we argue, we discuss and if we yell loud enough, we are heard. Town hall meetings are democracy at work, dialogue, discussion, disagreement.

We need to remember this wall….celebrate the meaning behind it; the freedom of a choice, to meet and to have a voice. More importantly, to remember a time when our friends and family did not have these freedoms. Personally, I have pulled out my tie-dyed, patchouli scented shirt…that’s right…feeling a little idealistic.

Happy Berlin Wall anniversary and Happy Veteran’s Day.