Month: March 2008
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I didn’t want to go to Holland
So, I wanted to write this post about my FIRST night away with my husband since Samantha got sick and what a fun time we had BUT then I got diverted. I learned about the birth of Baby C and he and his parents have been on my mind all day. Without divulging too much,…
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Ok, ok, ok
So, as a friend of mine put it, “You told us you were going home and that was it.” Yes, she’s right….it’s been a while since we sent an update. I gotta tell you though, the hospital sucked the life out of me; suck, suck suck. I don’t know how we got through 45 days…
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Homeward Bound!
Samantha has done a great job of showing the doctors what they needed to see. Such a good job in fact, that we are able to go home tomorrow (Wednesday) morning! Whoo Hoo!!! So, what did we find out? Samantha’s seizures are primarily in the left frontal lobe. She does however have some other ‘discharges’…
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Samantha’s long night
Samantha and I spent the night battling evil catheter nurses, seizures and begging for drugs like a junkie on Hollywood Blvd. Sound like fun? Well at least the coffee is free. Kids who have muscle issues sometimes have a hard time emptying their bladder..you know the song…the hip bone’s connected to the leg bone? Well…
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Welcome to Samantha Watch 2008
First day in the hospital! Samantha is hooked up and I’m watching squiggly waves on the monitor now. She had one seizure….as soon as the last electrode was placed on her head she gave a little show and then fell asleep for 4 hours. I think it was the airplane glue. Since the eletrodes have…
Samsmom: Life, Joy, Loss and Loving your Mitochondria 