Mitochondrial Awareness Week is coming to a close and I am late in posting. This is not to say this week, and this disease has not been on my mind. Like many times before, this stupid disease sits in the corner of my life, farting and belching, creating a stink, and reminding…….
I have often said this disease could suck my big toe.
Which is ironic….
The big toe thing.
Mito symptoms present in so many different ways, seizure, muscle weakness, tummy issues, heart issues…. you never know which cells and body systems will be impacted.
One issue for my Bro is nerve cells- he has quite a lot of neuropathies in his hands and feet.
Think about your hands and feet. I am thinking about mine right now as my fingers tap my keyboard, my foot kicks absent-mindedly at the edge of my desk. The nerves in my hands and feet remind me when I kick too hard or do something awkward.
‘Ouch, that hurts.’
Our nerve endings protect us from ourselves.
We learn at an early age that the stove is hot, ice is cold, we have to pick up our feet or we will stub our toe. But when you no longer feel anything at the tip of your toe or on your little pinky finger, you don’t realize when you damage those tiny, fragile appendages.
Bro can’t really feel below his knees. That’s a lot of body to maneuver without feeling. Feet get heavy and hard to lift, or they lift too fast, and toes get stubbed, again, and again.
Or, a toe gets broken, but that toe can’t feel anything, so that toe can’t tell you it’s broken.
Bro’s Toe broke a couple months ago. But because the communication between Bro and his Toe is also broken, Bro’s Toe couldn’t yell loud enough to be heard.
And like many unheard toe’s, Bro’s Toe got infected.
Infections are terrible, intrusive beings. And like any unheard infection, the one in Bros Toe moved, squirmed, bartered and manipulated its way into the bone.
Big Toe Bones don’t like to be infected.
Bones don’t like to be infected. And as much as we would like to think that our bones are hard and calcified, bones are quite vascular and dependent on blood flow.
And because infections like nothing more than to spread to other area like further bone and vascular highways……. the infected part of Bros Big Toe needs to go.
Adios y vaya con dios.
This Little Piggy went to…..
And I joke. Because this is what you do when this sucky ass disease that can suck my big toe infects Bros Big Toe.
You tell Toe jokes.
In all seriousness and support, Bros Toe goes on Tuesday and Bro will be non-weightbearing for a while.
All toe jokes, toe memorials and words of support can be posted here or on social. Bro would love to hear how much you will miss Bros Big Toe.
Please PM me if you would like to help in other capacities. I will be setting up ways to help soon.
Love this tribe.
And this disease can still suck my big toe.
Samsmom 